Community Forum


Hi! We are four girls working on a project about epilepsy. We are thinking about developing a product (this is only in our minds, nothing serious) so we are checking out if this would be a product worth developing and if it is actually needed. We all know someone with epilepsy and we want to help.

We call our product Epiplus. It is a product that have several ways of working. One way is that you connect it to your body, the other way is that you click a button. Either way, it contacts one person and the hospital (if you want it to, you choose) so that you can get help faster. We are also open to new solutions, so if you have some suggestions - THANK YOU!!

If you could please just take five minutes answering these following questions, we would be so happy. Thank you!

1. What is your age?
2. Are you male or female?
3. What kind of epilepsy do you have?
4. When you are having a seizure, do you have control?
5. Would you be interested in a product like this?
6. How much would you pay for it?
7. Where would you buy it?


Hi Lenaespv,

I'm already doing much the same.

1. My age is around 60.

2. My sex is male.

3. Simple & complex partial seizures of Temporal Lobe Epilepsy has me with secondarily generalized tonic-clonics before a Keppra routine.

4. Control of what? Strong seizures can temporarily incapacitate Skinnerian Behaviourism, but the question is a Pandora's Box of "free will" debates hiding in the basically undefined neurological concept of "consciousness".

5. I already use an improvised mixture of digital devices to do much the same as the proposed unified product.

6. I've added to my devices over the last few years, to a total cost of around $2,000, while what I'm still using, at current retail prices, would be about $600. The monthly operational expenses overlap with other "utility bills" (internet, GPS, cell phones, batteries, storage/clouds, etc.) from $50 to $100 a month.

7. I bought mine from internet retailers and ebay (medical providers can turn a 50¢ bandage into an all or nothing $500 medical expense forced "choice").

My contraptions work best at detecting seizures entering the realm of complex and stronger seizures while walking (I can easily notice/detect my own simple partial seizures). Disruptions of routine and/or rhythm results in higher status monitoring, and if routine isn't quickly restored, initial alerts, etc., to intermediate steps of uploads of location, travel, audio, etc. to a cloud or an active monitoring base (with additional e-mails of records for reference). (Crude eegs from modified toys adds mainly bulk data when in a wider environment). Trying for video has additional controversy. Data saturation is quick; about 16 GB/month.

Most controversies are illustrated by similarities of court cases involving epilepsy dogs and/or an inverted right to privacy. For example, if I were using my equipment when I was raped during/post-ictal of epileptic seizures, I would have been arrested for violating the privacy rights of the rapist. Hostile responses to epilepsy dogs from businesses and from service providers are noted in many court cases (the epileptics most always lose); I meet many hostile responses to my visible GPS unit too. A report on a recent "PR stunt" provides a similar example, with a comment on ADA issues:
"Rene S. Hollan: 3 days ago
Mr. Meinert is not concerned at all about privacy: his establishment, like many, has surveillance cameras on the premesis.

His comment about “ass kicking” was inflamatory and all it does is encourage someone, wearing Google Glass, to enter his establishment, with their attorney, cameras in hand, DARING anyone to kick their “asses”.

All Mr. Meinert can do, unfortunately, is ask those not welcome to leave. He can’t take away their cameras, glasses, recordings, and suggesting they might get an “ass kicking” can be construed as incitement to riot.

Google Glasses can be a godsend for those who suffer from “face blindness”, and can’t recognize their friends without assistance. Mr. Meinert therefore invites lawsuits under the Americans With Disabilities act should he try to exclude individuals wearing such assistive eyeware. Appearing like a “dork” might lead to societal shunning, but it is not a crime. Excluding someone from an establishment for wearing assistive technolology to overcome a disability, however, would be.

If Mr. Meinert had been publicly silent on his prohibition against OTHERS using cameras on his premises, this would have never come to the light of day. As it is, he now invites those offended to press their legal rights, however obnoxiously, to make a poiint, and in the process, his life miserable. I wish such people success."

and more at:

After a dispute about me not providing transportation by my not driving a vehicle for a medical provider, my equipment was cited as a reason for notice of trespass and threat of forceful removal by medical providers from their public area, and of my epilepsy as a "disqualification". As the dispute also included the poor/hostile treatment clients were receiving at a combination nursing facility/retirement center, the recent "No CPR policy during 911 call" comes close for technicalities of no medical from medical personnel, just plenty of non-medical loopholes.

Then, esp. since clients are often treated like livestock, epilepsy alert equipment might provide evidence illegally of illegal actions:

Seizure detection equipment inadvertently also detects things like "an epileptic's encounter with a train", a "person being kicked off the public bus for calling 911", to things like, "social worker screaming out her hatred of trouble making epileptics".


P.S.: Note the brand name "EpiPlus - is a dietary supplement for pets (with seizures); (I've already tried the ingredients on me, decades ago, with no luck; Bort's brand name is something else again, as is trademark EPI-PLUS 4102232).

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline