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wondering if my neuro is doing everything he can

Thu, 02/18/2016 - 12:03
A little history. In December of 2014 I started feeling "weird" for lack of better word. I would feel like my head was floating away, I was dizzy and strange pains in my head. Rewind, In 2005 I was only 25. I was diagnosed with fibromyagia because of fatigue and tender spots on my body. I never believed that's what it was so I refused to medicate. I loved a somewhat normal functioning life. Back to Dec 2014. I was told by the Er doc and my primary it was just vertigo. No reason for this was given. Around may if 2015 I was still having occasional episodes so I was sent for a hearing test. That was all clear. Around June or July still complaining I was sent for an xray of my neck because I had taken prednisone for sinus infection and I was in a lot of pain. Found out I had loss of cervical lordosis meaning my neck was curved the wrong way. Still not an explanation to the weird feelings. Finally sent to mri. That was clear the k God. I asked to see a neurologist and with a journal of everything from 2005 he sent me for my first eeg. It showed left sided sharp waves. This was October 2015. He put me on keppra 500mg 2x a day. No explanation to what was happening. In November 15 I was still getting the episodes so he tried to up keppra to 750 mg 2x a day. I did that for 2 weeks and ended up in er with chest pains. But all heart tests came back clear. So I went back down to the original dose of keppra. January 2016 I was still complaining that the keppra wasn't doing anything to help so I went in for another eeg. Same thing as first. Left sided sharp waves. So they added lamactil 25mg 2x day. It was working wonderfully. Then 2 weeks in I got the rash. Had to stop taking it. So bummed. Every time I ask why at 35 years old I suddenly started getting these partial seizures the Neuro says he's not sure why. I'm all for making me feel better but is an eeg test all they can do for me? I mean what if there is an underlying cause. I don't want to just medicate these new seizures If we can figure out what's causing them in the first place. Now I'm on keppra 500 mg 2x a day and on 300 mg trilepital 2x a day. (today is day 4 of the new med) I feel horrible. I hate this new medicine. The nurse that is the only one that I talk to when I call the office just keeps telling me to tough it out. I have to give it time. Blah blah I understand that but do I have to keep trying medicine without even knowing what my diagnosis is. Thanks for reading this long post. I feel you guys are the only one that understands.

Comments

The cause may never be found.

Submitted by just_joe on Fri, 2016-02-19 - 17:36
The cause may never be found. Moving from one doctor to another whti problems that stem from the area and things you postes is a natural.. The neurologist did a test and fhat test showed him that you has left sided sharp waves. Spikes or saves are known several other ways. Seizure activity. Abnormalities is another. The EEG is a test showing the electrical output coming from your brain. What starts a seizure is an irregular impulse going off wrong in your brain.. Those waves, are abnormal, irregular, abnormal. That 1 impulse hitting wrong starts a chain reaction which is the seizure itself. Medication are created to stop those impulses and keep the chain reaction from happening. It takes time to get the medication needed to stop the seizures, Once the med is picked then you have the dosage. Follow the prescription as written IF it is to be taken 2 times a day those times need to be 12 hours apart which would also help keep the therapeutic levels where the neurologist wants them.

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