The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

What to do?

Fri, 11/13/2015 - 01:27
I will try to make this short. I was diagnosed with Epilepsy at age 16 by a Neuro after he did an EEG. I went into remission for 2 years before seizures became active again. By then my neurologist had died, leaving behind no records. All the new neurologist have done multiple EEGs , finding nothing. Between that and the fact that I don't always have incontinence with every seizure, they say I have pseudo seizures and that I am faking. This is aggravating because them, ER drs, and paramedics treat me, my family, and friends rudely or with neglect. They didn't have me on seizure medication because of their assumption. I recently went on a business trip for a not for profit org to Colorado and almost died. I was admitted to a hospital with status epilepticus where I fell into lung failure and had to be on a ventilator. Still no positive EEG results, just positive witnesses. I am at my wits end to get them to understand that I do have Epilepsy and that I need help. These seizures have robbed me of my education, employment, my dreams, and my LIFE, etc... Does anybody have suggestions or can tell me whether or not they have only had bouts of incontinence? Feeling Down :( In Indiana

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.