New here and help needed for teen daughter...

hello - my daughter (16) was diagnosed with P.O.T.S. (Postural Orthostatic Tachycardia Syndrome) 2 years ago after multiple episodes of syncope. She has experienced syncope on and off since a young child (a few times a year). But after a cheerleading accident 2 years ago the episodes came on multiple times a day and with change in position - tilt test confirmed POTS and has been medicated since for this. HOWEVER, she started seizing with the fainting about a year ago - some pretty big seizures with incontinence and some not as big. Neuro ran EEGS nothing ever showed up - they decided they were non-epileptic seizures, most likely due to events from the POTS stress. SO fast forward to a year later the fainting has been minimal...however on occassion the strobes still bother her at a concert, fireworks forget it and loud noises - boom she's down. And now the past 2 months she is having what I would say are very much seizures of some sort. For instance - last night I walked into to tell her something she was seated making beads - engaged with me in a story and bam her head drops and her upper body begins to jerk methodically - she is not conscious. The jerking lasts for maybe 30 seconds before she regains consciousness and then just stares. Does not remember what happened. This has happened a few times now in the past 2 months. Sometimes it begins with her sort of lip smacking and just staring - and not always the upper body jerking sometimes she will just fall over. Her neuro has not given me too much attention because it isn't showing up on the EEG - we do love him dearly and he is awesome but I am wondering what else could be causing this. Her younger sister had absence seizures at age 2 and out grew them but we have a family history. IF this is epilepsy why is it not showing up on the EEG ever. I can not explain the anxiety and stress this is causing her and us. She is scared and frustrated. I do not think this is provoked by some psychological disturbance in her. She was just fine talking to me and wham this comes on.....we go to Cleveland clinic now - travel 5 hours to go there for her POTS management. I don't know what else to do - she will be going off to college in a year and a half we hope but this has to get in control for her. Would Nationwide childrens be a better place to help I don't know. I am so lost and confused.....any suggestions.