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Do I have epilepsy really?
Sat, 01/28/2017 - 19:59I was diagnosed as having seizures before I was a year old. After 1 year old I stopped having them and the doctors conclusion was that I outgrew them. November 2015 I had convulsions for 2 days with no stopping while being fully conscious and aware. The doctors couldn't make it stop. The next month I had an appointment with a neurologist and from a physical exam and my story he diagnosed me with myoclonic epilepsy most likely JMC because I had the same thing when I was an infant, and also absence seizures. I was prescribed Keppra and it never fully work. November 2016 my seizures changed to what appears to be more on the lines of tonic clonic. However I've never lost my bladder or bowel function and the Keppra isn't working. Does this mean I don't have tonic-clonic seizures or epilepsy? My MRI didn't show much damage just some from concussions that were present before the seizures started. I've only had 2 30 minute EEGs and they showed nothing. I'm being referred to an epilepsy clinic but haven't been to it yet.
Thank you in advance for your opinions!
Thank you, I have been doing
Submitted by Morgan Baxter on Fri, 2017-02-03 - 19:14
Thank you, I have been doing a lot of research since. I was told by a nurse who saw one recently that they're not any typical seizures she's seen. But she also said I don't have a post ictal phase. I looked up what that was after and I definitely do experience all of those things it's just hard to stay still with my eyes closed and sleep when doctors want to check you over. I have talked to my neurologist about still having seizures no matter how high the dose has gotten over the last year. Seeing as there's no conclusive evidence of what type it feels to me like I'm being left on the back burner. As for the convulsions for the two days, the ER doctors never got them to stop. They never did any scans or even an eeg to see what was happening. As I've been talking with people who were around that time period we've seemed to have come to the conclusion that a lot of my other neurological problems like memory impairment, confusion, difficulty speaking and writing as well as tremors and numbness in my hands all started after that. However my neurologist just swept those issues under a rug and never had a discussion on the possible causes of these issues. I still don't feel like I really have a diagnosis which is hard for school accomodations. Is there any opinions on what things I should look into as possible causes of the whole thing or ways to describe it and get my neurologist to pay attention to the other neurological symptoms?