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Desperate for help & answers (Long!)

Tue, 11/20/2007 - 00:20
Hello, I hope it’s all right I post this. My name is Jennifer, and I am a sixteen year-old female. I was born 2½ premature, and had a severe medical issue that required surgery. I don’t know of a proper name for it, but it’s basically that my bowel and intestines were not connected when I was born. I had petite mal seizures for the first few months of my life that doctor’s believed were due to my birth issues and after a while the seizures stopped on their own. Apart from an episode that required a second surgery (an almond got stuck in scar tissue), I grew up with no real health problems until I was 11 years old. One afternoon I was playing across the street from my house with a friend, catching crawdads and tadpoles in the creek that ran through the town when suddenly my leg started to feel very weak, and felt pins & needles (almost as thought it was asleep) and started to visibly spasm. It was towards the end of summer, and I’d spent most of the day swimming at the local swimming pool, so I assumed it was some sort of cramp and didn’t bother to say anything to my family. A few days later I’d been woken up by my family, all seeming extremely worried and my father was out of breath, and I asked what was going on and my father told me I’d had a seizure (a Tonic-Clonic) in my sleep and that he had been running around to neighbors houses to try to get access to a phone to call 911. My family is very poor, and at this time didn’t have money to pay the phone bill so it got shut off. Immediately after waking up my parents rushed me to the closest emergency room, and the entire car ride there (around 30 minutes long) I could not stay awake for the life of me. I felt very drained and all I wanted to do was sleep. After remaining at the hospital for the longest 3 hours of my life, the doctor merely dismissed my seizure as a diabetic episode due to low blood sugar. I was tested for diabetes a week or two later and didn’t have diabetes after all. I went to a neurologist shortly after, and he decided to do an EEG. The day the EEG was scheduled, my family got evicted from our home so I missed the EEG. After moving and settling into a new home, and new town, we never rescheduled an EEG or even went back to a doctor. The episode I assumed was a cramp happened countless times over the next five years, at any time of day, or night (I woke up because of it several times) and only in the 4th year did I mention it to my parents after one extremely bad episode that consisted of my leg kicking out so hard I accidentally sent my poor cat flying, because she was laying on my leg (she’s perfectly fine). Also, I keep forgetting to mention that these episodes of paralysis always happen with my left arm & leg (sometimes both, sometimes one or the other) and I’ve never had problems with my right arm or leg. After that, we attempted to schedule an appointment at the clinic my parents go to but they said they didn’t take new patients… It wasn’t until September 10th this year that I actually did get into the clinic to see a doctor after having a second Tonic-Clonic, which was in my sleep just like the first. In the last few months I’ve gone through blood tests, a sleep-deprivation EEG, and a CT (both with contrast and without) and all the tests came back normal. I have not had another Tonic-Clonic since the one in Sept. but I did have something my family considers a seizure. I woke one night to my entire body shaking violently, and passed out afterwards. I may be lazy, but that is not something I would go right back to sleep afterwards yet I don’t even recall laying my head back on my pillow to go back to sleep. I’ve also had moments of extreme confusion where I can’t recall even the simplest of things. One of the more memorable moments happened one afternoon while sitting in the living room, watching TV with my family. I was feeling fine but then all of the sudden I felt almost sick to my stomach, and had the urge to get up and go into the kitchen for something… Yet I could not even remember the direction of the kitchen, despite the fact that the doorway to the kitchen was visible from where I was sitting if I’d turned my head to the left two inches… Another moment happened while I was playing a computer game with my mother and it was a game we’d been playing for over 2 hours together… Again, I felt sick to my stomach and I was supposed to click the “undo” button (a button I’d pressed hundreds of times in the past 2 hours), yet I couldn’t even remember where it was or how to click anyway. I eventually just gave the mouse to my mother and said, “I can’t do it. Will you please just push the button?” It took around 30 seconds before returning to normal. Anyway, as I said, all of the tests came back normal. Now my doctor is considering it may be psychological and suggested I see a psychiatrist (I am seeing one on the 27th)… I apologize for the extreme length of this, but I figured it best to give as many details/back stories as possible… The reason for the posting is to ask… does this sound like genuine epilepsy, or is it really psychological like my doctor thinks? And are these moments of “Confusion” seizures, same with the episodes of paralysis? Thank you very much for your time, and I would really appreciate any help/answers I can get. Thank you once again, Jenn.

Comments

There are many kinds of

Submitted by pgd on Thu, 2007-11-29 - 16:35
There are many kinds of epilepsies (over 12 types). http://www.ninds.nih.gov/disorders/alternatinghemiplegia/alternatinghemiplegia.htm http://www.hemihelp.org.uk/ http://www.associatedconditionsofcerebralpalsy.com/seizure.html http://www.associatedconditionsofcerebralpalsy.com/ http://www.neurologychannel.com/epilepsy/index.shtml http://www.nlm.nih.gov/medlineplus/ency/article/001562.htm

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