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Changed seizure -type diagnosis?

Mon, 01/08/2007 - 21:43
Three years ago my daughter was diagnosed with absence seizures. We have been through the countless EEGs, the monitoring, the change of medications. Her EEG in August showed abnormal activity, so they increased her dosage of Zonegram. Now, as she has just turned 15, she went in for a 24 hour VEEG. It took the doctors and hospital personnel nearly 6 weeks to come up with the outcome... She is seizure free! Sounded great. Then, the scary word, "HOWEVER....we see some suspected classic symptoms of another disorder called Myoclonic seizures." What does this mean? The doctor says we won't know if my daughter has the Myoclonic thing for probably another year. "And what do we do in the meantime?" I asked. "we wait. And stay on the current medications, and then in June if she's still seizure free, I will sign something saying she can start driver's ed!" The Neurologist said in late November. Sounds great, except for that word, HOWEVER. What's Myoclonic, and how do they treat it? It seems as though just as I'm getting used to one diagnosis, they give us something else. Also, in the meantime, my daughter has been diagnosed with abnormal jaw placement, and the jaw reconstruct surgeon just told us she is in for a 5=hour surgery to cut upper and lower jaw and re-allign it around October-November, 2007. YUCK. How much can one girl take? She is a strong kid, but all this unknown is killing her. My husband and I are going for a second consult on the jaw thing, but it must be done because none of her teeth meet up (She's had braces for the past 4 years). At this rate, she wouldn't be able to drive even if the doctors now say she can, since she will have to miss 2 weeks of school, be hospitalized for at least that long, and have her jaw wired shut. What would happen if she should start having seizures again while her jaw is wired shut?

Comments

Re: Changed seizure -type diagnosis?

Submitted by Michtom on Tue, 2007-01-09 - 07:11
This link re types of epilepsy syndromes, inlcuding juveniel myclonic might help - http://www.epilepsy.com/epilepsy/types_epilepsy.html - cheers and good luck

Hi. Just found this. Its a

Submitted by Michtom on Wed, 2007-01-10 - 06:34
Hi. Just found this. Its a pretty technical documemt that primrily focues on comparing the newer AEDS, but chapter 3 has one of the most informative overviews of childhood epilepsy I have seen. In particular look at the bootom of page 5, point 3 - it indicates that it is not uinknown for children with absence seizures to later develop myclonoc seizures. The link is http://www.hta.ac.uk/fullmono/mon1007.pdf

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