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4 year old with one seizure per month, average of every 28 days

Tue, 03/11/2008 - 13:57

Topic: Diagnostic Dilemmas and Testing

I'm on a hunt for someone who has had the same experience as I am experiencing with my daughter.

Extremely brief version:

Year and half ago completely healthy daughter (3 years old) drops into status for over 5 hours and is put into an induced coma to stop the seizing.

No medical findings, was supposed to be brain dead, however surprised us all with a full recovery and is still ahead of her developmental milestones. Here is the continuuing issue:

After reaching some stability after original hospitalization our tracking has shown the last year to be a predictable monthly cycle of seizures. Approximately every 28 days with minor variations of every 2 weeks, my daughter wakes up at exactly 6 a.m. in a complex partial focal seizure. She will then have sleep and seize in a two hour cycle for 24 hours.

We have been able to stop the cycle using meds once the first seizure presents itself, but it seems like we are missing a piece. She has no other symptoms of this being driven by hormones.

Anybody have answers to a predictable monthly cycle of seizures for 24 hours for a 4 year old?

Comments

Re:

Submitted by cbrewton1980 on Sun, 2008-04-13 - 10:44

I can relate! My son has been having seizures every month for the past 4 months. Feel free to email me courtney_brewton@yahoo.com

4 year old with one seizure per month, average of three weeks.

Submitted by amykhayden on Mon, 2008-08-25 - 19:13

My 4 year is doing the same thing. His cycle is on three to four weeks also. His last seizure was 2.5 hours and then he did it again for 2 more hours after a short break. He was put in an induced coma as well. We just got out of the ICU on Friday. He is always asleep when he has them too. I would love to talk to you about this. Please email me when you get a chance at amy_k_hayden@yahoo.com

Thanks!

Re: 4 year old with seizure per month, average of every 28 days

Submitted by dempsey.woman on Tue, 2010-08-24 - 01:23

I am 24 yrs old and was diagnosed 3yrs ago. The problem is just like your daughter. The seizures are every 28 or so days, so much so that my mother-in-law has a reminder in her apt book. They also come first thing in the morning around 7am I will go into seizure/sleep pattern for the rest of the day sometimes 2. My doctor shakes his head and says he's never seen a case like me in his life, and runs 9 million tests- all of which come back fine? Which leaves me with no answers,loads of doctor bills, and feeling really overwhelmed. But what else can I do? I have looked at everything- to hormones, but they said those were perfect. I even looked into the lunar calendar because it seemed to my husband that my pattern fell around the full moon. But the only thing I came up with was that the so called "lunar effect" may effect some people(some really attribute their seizures to that) but out of all the studies they've done most of the M.D.'s still say that it's mostly myth.

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