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Should I stay, or should I leave?
Tue, 08/16/2011 - 13:58Due to me repeatedly being ignored, or receiving request to "Drop It", when trying to communicate with other members in the chat room; along with the number of years I’ve been a member of this community forum (joined in January 2005), I have never being given the opportunity to be a mentor. So I am going to do some serious thinking in order decide if I should remain a member of this community forum, or if I should leave.
I am a disabled American Navy veteran, who has epilepsy. I’ve been tried on nearly all of the antiepileptic medications available. Have been through several general EEG tests, several MRIs, 3 video EEG tests, with the third being a presurgical EEG that did include a Wada test. The results showed that if the area in my brain were my seizures originate is removed by surgery, I may permanently lose my ability to speak. With the information I have read pertaining to all of the brain stimulators (VNS, RNS, etc), and patient’s feedback about the negative results they experienced, I decided that I do not want any of the brain stimulators implanted into my body. Because of what all I’ve been through in trying to control my seizure activity, my decision is to stick with the two antiepileptic medications (Levetiracetam & Lamotrigine) that gave me the best results.
As for what I try to do to help people who are looking for support and information concerning seizures and epilepsy, it seems like the more I try to help, the more some people treat me disrespectfully or ignored, which has put me in a state of depression. I will admit that I do have a problem of not being able to remember every single thing said in the chatroom. So I will apologize for my problem. But I’m quite sure that I'm not the only individual who has this problem. I just don't consider it as being fair when I have never been given the equal opportunity to see if I could actually be a helpful mentor.
I started creating this message a few days ago, and then today checked to see if there was an option where I could manually close my account on this website. But by not locating this option I consider it as being a sign not to permanently leave this community forum. I just won't spend as much time posting replies and communicating with any members who visit the chat room.