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Nightmares or actual seizures?

Fri, 11/27/2009 - 17:35

Hi, my name is Violeta and I`m 18 years old. Today it`s been a year since I was diagnosed with epilepsy, almost two since I had my first seizure, and a year and a half since I`ve been having seizure nightmares, or my own freddy krugers as I call them.

When I woke from the first freddy I thought I`d actually had a real seizure, but later convinced my self that it couldn`t have been as it hadn`t felt as the first real one which had been whitnessed by my friends (as a difference to this nightmare, which no one had seen me have). In the real seizure I`d lost conciosness and when I became concious again I wouldn`t remember what had happened, it sort of felt like being dizzy or a little drunk.

Freddys always take place less than an hour after I go to bed. I usually fall asleep and the nightmare sets in the exsact place where I am in real life (meaning that if I go to bed in my room, that`s where the nightmare is set, if I go to bed in a friend`s house the nightmare will be set in that very place), and I see things happen from the exsact position at which I layed down. It`s always as if having my eyes open I feel myself shaking from head to toes, and I see the whole bedroom shaking as well. I always panic when I have them, at first I didn`t realize that I was dreaming so I would try to call for help, or even try to make my self fall off my bed so I`d make a noise and my parents would hear me. But of course I never managed to do it. I told my neuro about this and he said they were only nightmares and I had nothing to worry about, but honestly, it feels so real I`m just not so sure about what he said. Plus I read somewhere that sleeping seizures, or nocturnals as they call them often come in the shape of dreams. When I wake from freddy`s I know exsactly where I am, I don`t feel lost at all, I`ve never wet my bet (I know it often happens with seizures) and never had toungue bitting. I am medicated now, and never have suffered from seizures since I`ve been. It`s just that lately, this nightmares that had gone away a while ago have come back, as I am under a lot of stress. I know stress might be a trigger for seizures.

Anyway the question is, has anyone had any experience with nocturnals without any tongue bittin, or bed weting, or not even feeling lost after having them? Now that I`m used to them when have them I just tell my self to calm down and try to wake up, but sometimes when I do, the shaking gets worse and it feels so bad, so I just choose waiting. It is so scary, and don`t even know whether I`m just dreaming or really seizing.

I hope some one will have an answer to this.. or at least tell me about your own stories with nocturals..

By the way, sorry for any spelling or grammar mistakes, I never should have dropped out of my english classes. 

 

Comments

I have a very experience with

Submitted by DarianSox on Thu, 2019-07-25 - 02:19
I have a very experience with these recurring "Nightmares" I right this in quotes because I often have normal nightmares (scary dreams) and also lucid dreams (I know I'm dreaming and can control aspects of dream) but these nightmares always feel the same and have aspects of both. First of it is absolutely hell and these "nightmares" are easily the worst feeling/experience I can possibly imagine. I have JME and though I rarely have grand mals, I often struggle with muscle spasm and seizures during my sleep that terrify the people around me. I have had seizures during sleep without experiencing the "nightmare" and I often have these nightmares without a seizure occurring so it is often hard for me to figure out exactly what happened. These nightmares feel like Im falling in every possible direction (up, down, spinning all at the same time) this can feel nauseating and terrifying, this feeling is often coupled with the sounds of thousands of skipping demonic noises layered over each other being played forward and backwards. During the whole "nightmare" I often feel like Im screaming at the top of my lungs for the entire duration of the dream. Many nights I will wake up from the dreams and know I am in my bed but am completely paralyzed, only to instantly fall back into the dream. this cycle will loop for what feels like an eternity, and I often think Ive died is the "nightmare" is lucid enough, which it often is. Hope This Helps XD XD

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