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Surgery on a 3-year-old
Fri, 07/28/2006 - 21:45Topic: Surgery and Devices
Hello,
Our 3-year-old daughter has had seizures since she was 9 mo old. She was diagnosed with infantile spasms. She is significantly developmentally delayed, on numerous medication and still has between 0 and 6 seizures a night (almost exclusively in sleep). We just found out that she is a surgical candidate and we are hoping that she will have her operation soon at Boston Children's (Dr. Madsen). My greatest concern is for the "invasive monitoring" which sounds awful not to mention our inability to explain any of this to our poor, unsuspecting little girl. It seems that her seizures are originating from the right temporal/frontal regions. Does anyone hae any words of wisdom on this topic?
TIA
jessicarozen@yahoo.com
Comments
Re: Re: Re: Re: Re: Surgery on a 3-year-old
Submitted by angel_lts on Sun, 2006-07-30 - 08:01
Oh well that is good. I take fish oil and flax both have helped me.
No I do not. I have for 37 years complex partial, now some problems because of hormones, generalized too. I have learned alot through the years. I have a support group that has lots of info.
You may want to check out things like ketogenic diet, neurofeedback(not sure if they can do it that young).If you have questions just ask, I have tried both of these things and will go back to neurofeedback later in the near future - angel_lts@yahoo.com
Check out the support group lots of info there on these things.
http://health.groups.yahoo.com/group/epilepsyapproach/
take care
Lisa
Re: Re: Re: Re: Re: Surgery on a 3-year-old
Submitted by angel_lts on Sun, 2006-07-30 - 08:04
And now have scare tissue where I had my brain surgeries. This could be the reason why I am getting the generalized seizures but not sure till after I am through with menapause.
lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Re: Re: Re: Re: Surgery on a 3-year-old
Submitted by jessicarozen on Sat, 2006-07-29 - 21:15
She takes flax seed oil too... Lisa, why do you know about infantile spasms? You didn't have it, did you?