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right temporal lobectomy

Tue, 02/01/2005 - 09:38
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John

Comments

Re: right temporal lobectomy

Submitted by barrytest on Wed, 2012-11-14 - 21:56

Hello:

Has anyone found people who have had surgery locally so they can talk person to person with them?  If so how did you find them? I am 61 years old and and have seizures about one year apart.  After trying several drugs my neuro has suggested I go to a local eptoligist for evaluation.  He stated trying yet another type of drug has average success rate of 3%.  I am terrified of brain surgery.  Most of the comments here are positive. He stated the success rate for my type of seizures is about 80%.  I am an active person, skiing, biking, canoeing etc.  If after surgery there were side effects like loss of leg or arm use it would devistating to me.  OTOH I currently cannot drive due a seizure I had on 10/12/2012.  With the surgery there is the possibility I could drive again.  Any comments would appreicated.

THX,

Barry

Hello:

Has anyone found people who have had surgery locally so they can talk person to person with them?  If so how did you find them? I am 61 years old and and have seizures about one year apart.  After trying several drugs my neuro has suggested I go to a local eptoligist for evaluation.  He stated trying yet another type of drug has average success rate of 3%.  I am terrified of brain surgery.  Most of the comments here are positive. He stated the success rate for my type of seizures is about 80%.  I am an active person, skiing, biking, canoeing etc.  If after surgery there were side effects like loss of leg or arm use it would devistating to me.  OTOH I currently cannot drive due a seizure I had on 10/12/2012.  With the surgery there is the possibility I could drive again.  Any comments would appreicated.

THX,

Barry

Re: right temporal lobectomy

Submitted by survivor2013 on Thu, 2013-05-09 - 22:14

I had a right temporal lobectomy done on 1/8/13 and my last seizure was 1/7/13 you can find my story on this site (link below). I also have an advocate page on facebook http://my.epilepsy.com/node/1000441/full

my facebook page is called turning the world purple

I had a right temporal lobectomy done on 1/8/13 and my last seizure was 1/7/13 you can find my story on this site (link below). I also have an advocate page on facebook http://my.epilepsy.com/node/1000441/full

my facebook page is called turning the world purple

Re: right temporal lobectomy

Submitted by LynnA on Thu, 2013-08-08 - 17:31
Hi, I'm 32 and have simple partial seizures. I had a right temporal lobectomy 6 weeks ago and had my first post op aura last night, no seizure to follow though. I was still devastated afterward, thinking that surgery was unsuccessful when my recovery was going so well. I have heard it is normal to have an aura or seizure at this stage, due to dried blood still absorbing into the body and the brain continuing to heal. Lately, I've been feeling really "low" and emotional - not sure if that has anything to do with it. Has anyone experienced this? I'm new to blogging... Thanks for your help! Lynn

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