Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Implants v. medication

Wed, 09/14/2005 - 15:09
Son has epilepsy diagnosed since 17 years old. Participated in drug/alcohol abuse for two years, which brought on his first seizures. He is now 25, clean and is working as an architect intern, getting his masters degree last year. He continues to have a major seizure every three months. He is on tryliptol (sp?) and it doesn't seem to help. Was on tegratol for 4 years prior. His dr says he is not a candidate for the implant device as his seizures are "moderate" or at least not severe in terms of repetition. THey are grand mal and every time they occur, he looks like he has been in a brawl. It has happened twice at work, where he knows he is about to have one and goes into the bathroom to "hide"...I question the drs ability to either tweak his meds or totally rule out the effectiveness of an implant. He's embarrassed and depressed, obviously. I don't know where else to turn. Anyone with any advice?

Comments

Re: Implants v. medication

Submitted by jboyd on Mon, 2006-01-09 - 00:07
To me if you want to now more about the inplant go to www.cyberonics.com and sign up and they will seend you info about it and someone you or your son can call and talk to them to see if they say he qualifies and if they think he does they will call his docter and talk to the docter about it and more to your son. I know alot of docters who do not support the inplants so if you dont trust or you dought his advice then go get a secound one or call the people to cyberonics and talk to a case worker for your area. You will be surprised they will ask alot of questions but will be truth full with you. Check out the web sight i gave you. your not alone!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.