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Corpus Callosotomy Sugery

Tue, 06/20/2006 - 12:39
Topic: Surgery and Devices
My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the doctors want to try is corpus callosotomy. I would like to hear from anyone who has had this surgery or child has had it. His doctors are in Atlanta. Thank you so much! Trese

Comments

Re: Corpus Callosotomy Sugery

Submitted by Mom2Luke on Thu, 2009-11-19 - 14:48

Hi,

 My son is having a corpus callosotomy next Tuesday (Nov. 24th) I am trying to network w/ any other parents that have gone through this (or are considering it).  If you'd like to email me back, my home email is: carrieakee@cox.net.

 Thank you!!!

-Carrie

Hi,

 My son is having a corpus callosotomy next Tuesday (Nov. 24th) I am trying to network w/ any other parents that have gone through this (or are considering it).  If you'd like to email me back, my home email is: carrieakee@cox.net.

 Thank you!!!

-Carrie

Re: Corpus Callosotomy Sugery

Submitted by Mom2Luke on Thu, 2009-11-19 - 14:46

Hi,

My son is having a complete corpus callosotomy next week.  I am just trying to network w/ any parents that have gone through this. My son has LGS, and is severely cognitively impaired. If you'd like to email me at: carrieakee@cox.net that would be awesome!

Thanks!!

-Carrie

Hi,

My son is having a complete corpus callosotomy next week.  I am just trying to network w/ any parents that have gone through this. My son has LGS, and is severely cognitively impaired. If you'd like to email me at: carrieakee@cox.net that would be awesome!

Thanks!!

-Carrie

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