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advice on surgery decision
Tue, 01/11/2011 - 22:26Topic: Surgery and Devices
My one year old daughter is on her second medication and the seizures are still not controlled. Our doctor wants to do surgery to remove the abnormal area of her brain that is causing the seizures, but I am really nervous about this. She has no developmental delays and I know there is no guarantee the surgery will even stop the seizures. Please help!
Re: advice on surgery decision
Submitted by bella0809 on Thu, 2011-01-13 - 20:04
I had szs 36 years before opting for surgery. I tried 4 different meds, none worked, I had about 50 szs a year and finally threw in the towel and had surgery. I have been seizure-free since, which is now over 5 years. The meds will have side effects & if they're not working, don't stay on them. Talk to the docs about surgery and start getting the info. Make sure you talk to neurosurgeons who specialize in the surgery for epilespy and are pros. I found Dr. Doyle at NYU-Langone Comprehensive Epilepsy Center in NY and highly recommend him. Dr. Devinsky was my epileptologist.