CBD Oil

Brent, your experience with CBD oil sounds very much like my own.  I have had nocturnal, GM seizures for over a decade, complex partials evolving to generalized seizures.  I averaged a GM seizure every 4 to 6 weeks for about 7 years, and had aura's daily, before I did an inpatient EEG (I procrastinated for way too long) and it was determined that I wasn't a candidate for surgery and had already failed every medical trial I tried.  My neurologist suggested that I try medical marijuana (I live in Mass where it's legal), specifically CBD-rich strains, a recommendation that she had only made to one other patient at the time.  I first tried some CBD isolate that I ordered offline and noticed the first time that I took it that I had no aura's that day.  I decided to pursue medical marijuana, CBD specifically, further after seeing some results from the isolate, I had never seen any results from any AED's and was really excited to not have the side effects I was used to.  I returned to my neurologist four months later after having had no seizures for that time and hardly ever an aura to report the good news.  She was actually as surprised as I was and encouraged me to pursue a personal care giver to grow CBD-rich strains for me.  This is what I've done and it has been over 2 years since I first started treating my seizures with medical marijuana alone (no AED's).  I've had only three seizures over this time period (instead of the 20 to 30 I was averaging) and am sticking with this treatment option.  Similar to what you do, my cousin (also my certified care giver) and I grow CBD-rich strains like, Cannatonic & Harlequin, then process it (closed-loop extraction) and I then make gel caps with some of the concentrate and tincture as well.  This approach of monitoring the whole process, "from soil to oil", has served me well and I would recommend that this treatment option at least be considered by anyone not having success with AED's.

I have had Atonic and simple partial and now 3 general ( loss of consciousness) seizures for 10 years but only diag. 2 Yrs ago, I’m sure you KNOW why. I’m considered intractable and I’ve been on 7 different meds, currently on 2. I’ve had an increase again to 1-2 every 3/5 days and last week I had 3 in 5 days. I’ve been seeing a Neuro and he’s been great but even he is stumped. He and his colleague talked about the Vegas stimulator but frankly, I’ve read it’s not a guarantee and it has bad side effects! Added to that you still have to stay on your meds. I’m tired, depressed and just done. I’d like to try the oil but he hasn’t mentioned it. I asked to maybe go to the epilepsy center here  in St. Louis but he asked for more time to figure this out. That was a year ago. Blah if I take the oil, what about the ineractions with the meds?

Phillip-My mother has a similar story to yours. She’s been diagnosed with retractable epilepsy and has nocturnal GMs st night. At this point we’re done with conventional medicine and need to look to alternative treatment..I’m so interested in what you’re doing for her!