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New - still hard to believe!

Thu, 03/23/2006 - 11:32
I had a blacking-out episode this December which the doctors now believe was a seizure. I'm 35 and have never had anything like this before. Honestly, I still find it hard to believe except that my eeg results cam back abnormal, so I guess I have to believe it! Since then I have had a few auras but no passing out. My doctor started me on Trileptal. At first it made me really sick, so exhausted I could barely lift my head off the desk, and made my face break out like a teenager. On the upside, no seizures so far! I am not quite as tired after a few weeks on the drug, but still nowhere near my old self. Anyway, my question is, how long does it usually take to determine whether a AED will work for you? I feel like I'm just sitting around waiting for the other shoe to drop -- just waiting to see if I have any more seizures or not. It's kind of frustrating....Plus deep down I wonder whether I should really be on the meds at all...after all, it was only one seizure. Does that mean there are likely to be more? Thanks for your thoughts!

Comments

Re: Re: Re: New - still hard to believe!

Submitted by Anonymous on Mon, 2006-03-27 - 09:00
Welcome! Getting used to diagnosis of seizures certainly is hard, since it is so unpredictable. For some people, it's harder when the seizures are less frequent as you don't have the visible reminder of why the meds may be needed. How long it takes to get used to a med and know if it works depends in large part to how often seizures were occurring, how people feel on the med, and what people look like when examined or have repeat EEGs. It's a process that will take some time, frequent checkups with doctor. Keeping a record of how you feel, seizures, side effects, mood etc, will help you and your doctor decide how the treatment is working. Have patience, do your homework and ask lots of questions! Glad you are visiting here and let us know how the forum can help! Best wishes, Epilepsy.com Resource Specialist

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