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new to site
Mon, 06/19/2006 - 15:31Topic: New to Epilepsy.com
I am new to this site. My 15 year old son has just been diagnosed with epilepsy and I am hoping to learn more about it and to make some friends that will understand what I am dealing with! He has had a rough time, but seems to be doing better the last few days. Anyone have any ideas on how I can stop being so nervous about him when he is out of my sight? I know that he has to have a life and he has told all his friends what to do if he has a seizure. He also carries a card in his wallet with instructions and phone numbers. I am just still edgy about everything. It is very new and I have little knowledge of epilepsy. Thanks for listening!
Karen
Comments
Re: Re: Re: Re: new to site
Submitted by perumom137 on Thu, 2006-06-22 - 19:02
Sol, thanks for your advice and welcome. I will let my son try and find a bracelet that he feels comfortable with, since he is a teen and you know how they are! But he is very vocal about his epilepsy with friends and family, so he will probably wear one. Since he has grand mals, I think that he probably should wear one anyway. I do have the pill cases and he is so far great about being very conscientious about taking his meds. I really appreciate any feedback - this is all new to all of us!
Karen
Re: Re: Re: new to site
Submitted by solis on Tue, 2006-06-20 - 19:24
Hi Karen, Just my little opinion; but, as I see it, some types of epilepsy are more in need of a bracelet than are others. As I had epilepsy since I was very young, and only ever had partials, I never had the feeling I needed to wear a bracelet. I wanted to keep my epilepsy to myself, just like diabetics do, but I made sure I told all my close friends and always kept current medical information in my wallet. One thing I do find extremely helpful is having a weekly pill container. Actually I have 2.. one next to my bed so I can get my AM meds as soon as I wake each day & one in the kichen (where I'm making supper) with my evening meds. (That way there is no wondering whether or not I took my pills) I also have a small pill container I always carry with me, in case I'm unable to be at home when I need my meds. And I always make sure it's filled. www.epilepsy.com is an excellent place to learn. Run by physicians, you can be assurred that the information there is up to date and accurate. And, I promise, you will feel better once you do some research and have a greater understanding of epilepsy. Welcome... ~sol