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New To Room

Tue, 01/30/2007 - 10:35
Topic: New to Epilepsy.com
Hello Everyone, My nic is Dr Toots and I have been eppy for 35 years now. I have recently been offered right frontal lobe surgery and was wondering how many of you have had surgery and how it is going for you. Everyone I have chatted with seems to agree that they would do it again and that is encouraging. I was diagnosed about two years ago with Double Cortex Syndrome which is a birth defect and the epilepsy is a result of that. I am on three meds right now and wondering also how many meds are you on if you have had surgery and why this is necessary. Anyway, don't want to be to long winded so I will wait and see how many of you respond to this and hope for the best. Regards, Dr Toots

Comments

Re: New To Room

Submitted by My Miracle on Mon, 2007-10-15 - 13:43
Hello Dr Toots, Five months ago, my 3 year old daughter was diagnosed with double cortex syndrome. I would like to want could you tell me what you know about the condition? I asked her doctor what could i expected when you grow up (e.g., will she be able to functional in her daily life? and will she be able to care for herself?) Can you please provided me with some information? I have been really stressed out since I was told this information.

Re: New To Room

Submitted by galmoy on Mon, 2008-08-25 - 15:57

Hello Mr Mir,

 

I can't believe that I've finally found someone else with a daugher diagnosed with Double Cortex Syndrome. 

 I have been thralling the internet for a long time now and woudl love to know more .... read my story - our daugher is 6 years and is now attending mainstream school - she has a learning disability, myoclonic epilipsy and other 'issues'.  Nobody can give me any informaton on this syndrome. 

 

I hope your are still using this website.

 

Galmoy..

Hello Mr Mir,

 

I can't believe that I've finally found someone else with a daugher diagnosed with Double Cortex Syndrome. 

 I have been thralling the internet for a long time now and woudl love to know more .... read my story - our daugher is 6 years and is now attending mainstream school - she has a learning disability, myoclonic epilipsy and other 'issues'.  Nobody can give me any informaton on this syndrome. 

 

I hope your are still using this website.

 

Galmoy..

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