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Hello everyone my name is Booker Owens and i just recently found out my 5 yr old daughter has seizures in her sleep. My wife purely blames herself but it's not the case could happen to anyone but since we are new to this occurrence any feedback or consulting from one's coping with or parents coping for their children would be greatly appreciated please and thank you for your time and patience.

Comments

My daughter was diagnosed

Submitted by Kylie mom on Wed, 2017-04-05 - 12:37

My daughter was diagnosed with absence seizures when she was two years old. She has 80% of her seizure activity in her sleep. We have tried several different forms of medication to subside the seizure activity, which now, after almost 13 years we are still looking for the right coming ion of meds. Currently, she is taking onfi,which has been the largest change of improvement for her, along with lamectil, tranzene, and topamax, as well as at Ivan when she has a cluster of seizures. When she matured into puberty last year, we saw a major increase in activity during the daytime. We currently attend University of San Francisco and they have been amazing. Over time you will learn her quirks, and become an awesome advicate for your daughter. They were given to us because we could handle the situation. Just remember to stay calm, talk to her, because they get scared, and don't ask her a lot of questions, because it seems to put there little brains into overload and put them into a variety of seizures. Hope that I was of some help. All kids are trigered with this disease because of something misfiring in the brain, unless your wife threw her off of the roof head first, there is no blame to be given. It's just life, I wish you well on your journey and you are more than welcome to contact me with any further questions.

I would be glad that you

Submitted by Hannahccc on Thu, 2017-04-06 - 10:46

I would be glad that you found out when she was five. Let me try and explain..I have had migraines since I was at least 10 years old, and I'm about to be 43 now. In fourth grade, I had partial facial paralysis and temporary blindness in one eye due to one. Sometimes I see an aura, but most times I do not. I have had CT scans,and EEG and both showed normal. The MRI showed possible lesions, but the doc said they were so small it was undetermined. Sleep has always been my best medicine, but getting past the pain to be able to sleep is the trick for me. I have tried numerous anti seizure meds for these headaches but in the last few years I have settled on using Sumatriptan (Imitrex). I found it has an inhaled version and it usually works for me in 15 minutes, if I'm in a place I can sleep. It lessens the waves of pain for me, and allows me to sleep. If it doesn't work, I usually 'rock' through it until I vomit and pass out, which is another reason the inhaler works so well for me. Oral meds usually don't stay down. I have always 'rocked' through the pain. That's just what I have always called it. Up until recently I thought this was a conscious thing I was doing to work through the pain. Recently I was shown a video of hemiplegic seizures during a migraine and saw my rocking. I would describe the feeling differently, but in appearance it is the same. At the age of about 28, I had what I call an Acute migraine, being that it went from 0 to full blown in less than 15 minutes. I was driving and had a seizure. This time my arms pulled to my chest and my diaphragm started to spasm while I was rocking. Luckily I was able to pull over without incident (legs worked fine and I never lost consciousness) and call for help getting home. I have not had anything close to that for years now thank goodness.In all my years and doctors and specialist, no one has ever told me about any epilepsy connection. Except for the seizure while driving, I didn't think I was having seizures until I saw a YouTube video a couple days ago. Now I can identify 3 types of seizures I have had or do have with my migraines. I chalk it up to poor communication with my doctors and lack of knowledge on my part. Not sure how I feel about this revelation yet. Also not sure if knowing will do my any good, besides taking more precaution when I do get a headache.I am glad that I saw the video and found this forum. Maybe some of this may help someone else in some way. I welcome any feedback or questions.

I would be glad that you found out when she was five.  Let me try and explain..I have had migraines since I was at least 10 years old, and I'm about to be 43 now.  In fourth grade, I had partial facial paralysis and temporary blindness in one eye due to one.  Sometimes I see an aura, but most times I do not.  I have had CT scans,and EEG and both showed normal.  The MRI showed possible lesions, but the doc said they were so small it was undetermined.  Sleep has always been my best medicine, but getting past the pain to be able to sleep is the trick for me.  I have tried numerous anti seizure meds for these headaches but in the last few years I have settled on using Sumatriptan (Imitrex).  I found it has an inhaled version and it usually works for me in 15 minutes, if I'm in a place I can sleep.  It lessens the waves of pain for me, and allows me to sleep.  If it doesn't work, I usually 'rock' through it until I vomit and pass out, which is another reason the inhaler works so well for me. Oral meds usually don't stay down.  I have always 'rocked' through the pain.  That's just what I have always called it.  Up until recently I thought this was a conscious thing I was doing to work through the pain. Recently I was shown a video of hemiplegic seizures during a migraine and saw my rocking.  I would describe the feeling differently, but in appearance it is the same. At the age of about 28, I had what I call an Acute migraine, being that it went from 0 to full blown in less than 15 minutes.  I was driving and had a seizure.  This time my arms pulled to my chest and my diaphragm started to spasm while I was rocking.  Luckily I was able to pull over without incident (legs worked fine and I never lost consciousness)  and call for help getting home.  I have not had anything close to that for years now thank goodness.In all my years and doctors and specialist, no one has ever told me about any epilepsy connection. Except for the seizure while driving, I didn't think I was having seizures until I saw a YouTube video a couple days ago.  Now I can identify 3 types of seizures I have had or do have with my migraines.  I chalk it up to poor communication with my doctors and lack of knowledge on my part.   Not sure how I feel about this revelation yet.  Also not sure if knowing will do my any good, besides taking more precaution when I do get a headache.I am glad that I saw the video and found this forum.  Maybe some of this may help someone else in some way.  I welcome any feedback or questions.

I would be glad that you found out when she was five. Let me try and explain..I have had migraines since I was at least 10 years old, and I'm about to be 43 now. In fourth grade, I had partial facial paralysis and temporary blindness in one eye due to one. Sometimes I see an aura, but most times I do not. I have had CT scans,and EEG and both showed normal. The MRI showed possible lesions, but the doc said they were so small it was undetermined. Sleep has always been my best medicine, but getting past the pain to be able to sleep is the trick for me. I have tried numerous anti seizure meds for these headaches but in the last few years I have settled on using Sumatriptan (Imitrex). I found it has an inhaled version and it usually works for me in 15 minutes, if I'm in a place I can sleep. It lessens the waves of pain for me, and allows me to sleep. If it doesn't work, I usually 'rock' through it until I vomit and pass out, which is another reason the inhaler works so well for me. Oral meds usually don't stay down. I have always 'rocked' through the pain. That's just what I have always called it. Up until recently I thought this was a conscious thing I was doing to work through the pain. Recently I was shown a video of hemiplegic seizures during a migraine and saw my rocking. I would describe the feeling differently, but in appearance it is the same. At the age of about 28, I had what I call an Acute migraine, being that it went from 0 to full blown in less than 15 minutes. I was driving and had a seizure. This time my arms pulled to my chest and my diaphragm started to spasm while I was rocking. Luckily I was able to pull over without incident (legs worked fine and I never lost consciousness) and call for help getting home. I have not had anything close to that for years now thank goodness.In all my years and doctors and specialist, no one has ever told me about any epilepsy connection. Except for the seizure while driving, I didn't think I was having seizures until I saw a YouTube video a couple days ago. Now I can identify 3 types of seizures I have had or do have with my migraines. I chalk it up to poor communication with my doctors and lack of knowledge on my part. Not sure how I feel about this revelation yet. Also not sure if knowing will do my any good, besides taking more precaution when I do get a headache.I am glad that I saw the video and found this forum. Maybe some of this may help someone else in some way. I welcome any feedback or questions.