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New

Mon, 09/04/2006 - 18:40
Hello This is my first time here. I have a 4 yr old boy, he is on Keppra. We just tried trileptal, that DID NOT work. Now we are looking at a possible surgery. Iam so scared.

Comments

Re: Re: Re: New

Submitted by GodivaGirl on Tue, 2006-09-05 - 17:28
Always glad to give parents something to think about, so my pleasure. Good luck to you and your little boy. Hang in there, and be tough. Things have a way of working themselves out, that's what I always say :) Erin

Re: New

Submitted by Essie on Tue, 2006-09-05 - 05:34
Hello Raiann My son, 5, was diagnosed about a month ago with Juvenile Myoclonic Epilepsy. We've been on Lamictal since. For the moment it doesn't seem to control his seizures, but we're not on full strength of the dosage yet. Even though it's been an up and down month with all the side-effects, I will definitely try every medication out there before I put him under the knife. I've heard wonderful surgery stories, and I've heard some that went bad. This is just my opinion, and if you're going for the surgery, I sincerely hope your son will be seizure-free afterwards and that everything will go smoothly. Good luck, and take care! Essie (mom to Nian)

Re: New

Submitted by angel_lts on Tue, 2006-09-05 - 06:54
Since he is so young, It can be many things causing the problem. Sometimes it takes one, two three meds to get under control and being so young I would keep trying. Surgery for some can cause scare tissue, and that can cause seizures itself. There are many other options, like ketogenic diet, Neurofeedback, change of diet, checking things like b complex, magnesium, calcium, just a few that can be causing a deficiency and cause seizures. I agree with the other comments. I have epilepsy for many years now and I have tried them all. I found that omega just a few years ago that it helped to decrease many auras and seizures. SO you see you just have to keep trying. I mean surgery can help many people but brings other problems on for some. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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