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Is it all in my head? ( no pun intended)

Fri, 05/19/2006 - 15:28
Im a 43 yr old male, diaganose with simple and complex partial seizures. My history is congenital hydrocephalus and a congenital heart condition, mitral stenosis. Both conditions are stable, I no longer have a bad heart valve but have a mechanical heart valve which requires me to take blood thinners (Coumadin). As a result of the blood thinner, i develped a cranial hematoma and had lapsed into a coma for a short time. I had a "craniotomy" 3 times emergently that night but recovered after about 2 yrs getting myself back on track. I have an abnormal EEG with spikes and "fading" (?). My symptoms I didnt asociate with seizures until my doctor told me that is what they were ( one-sided numbness in my right arm and leg ( the hematoma was on my left side of the brain). I get nausea and a metallic taste and my speech slures and my tongue shakes and quivers, especially if I dont get enough sleep. I am totally aware of where and when I am at the time but feel "disembodied". I also have flashing lights that start in my peripheral vision and last for 20 min with no headache afterwords. Are thise common for seizures? Am I "normal"?? I just feel like its "all in my head" sometimes. I count myself fortunanate that I have thise symptoms only mildly and not too often but still, it doesn't seem to "fit" as to what I percive epilepsy to be. Please write back and talk to me! Thank you so much!

Comments

Hi Damon &

Submitted by solis on Sat, 2006-05-20 - 18:09
Hi Damon & welcome.. Epilepsy.com is a great place for information. If your physican has said he thinks you have epilepsy I'd highly recommend you go to an epileptologist to be examined (= a neurologist that has specialized in the over 40 types of epilepsy). (to find one go to epilepsy.com..top of the page..3rd from the left) I'd also ask (politely) that (for your own safety) you (please) don't drive until you are checked. As for your question, I'd recommend you read http://www.epilepsy.com/101/ep101_symptom.html ~sol

Re: Hi Damon &

Submitted by seizuregirl on Tue, 2006-05-23 - 18:11
Hi everybody :-) Well, I have complex partial seizures and I can honestly relate to what you guys are saying. When I have my seizures it usually starts wtih a flashing light at what I would call the corner of my eye, but now hearing the word "peripheral" is most likely in my case. When it happened to me, I never even knew the word "peripheral" 'coz I just simplified it in easier terms for me in describing it to my doctor. So, glad to be able to talk to people who actually understands seizures on here. No one in my life seems to understand what I'm going through as in my friends/family 'coz they've never experienced what it's like as a patient. Seizuregirl "Life is what you make of it"

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