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Hi I'm a new to the site

Wed, 10/25/2006 - 12:15
Hi, I am 25 years old, I have partial complex seizures, and I was reason diagnose with Mesial Temporal Lobe Epilepsy. I have been taken medicine since I was about 13 years old. I start off with Tegretol, and once god blesses the doctors to get me on the correct dosage to prevent me from having seizures. I was able to drive once I turned 17 years old and I was blessed to be seizure free until I turned 24 years old. I had peer pressure to smoke weed at early age, and since I knew I had seizures I was not move by the peer pressure to pursue smoking period. My doctor told me if I drink then I would have seizures and I only had one drink in my life and that was on my 21 first birthday. Last year, I worked in a cooperate office and I had a seizure at work and it a great effect on my life was not getting my body enough sleep and a lot of time going off my second wind. I was taking tegretol at the time since and I then switch to a second drug which was tegretol XR and I still had a seizure, and I was switch to Lamictal and had a great side of effect of being by-polar, so then I started Keppra. I had a seizure on Lamictal and my doctor prove that sleep, stress, and missing medicine, and not taking my dosage on time was not causing my seizures. I was referred to a different specialist at Washington University in Saint Louis, and I under took some testing. I had to take a pet scan, MRI, and was put on EEG monitoring so they could find where my seizures was coming from. Every thing match to left temporal lobe and all the test match the same spot in which the seizures were coming from. The doctors think I an excellent candidate for surgery with a 60-80 percent chance of not having seizures. I am now at the stage of making a serious decision on what choice I should make regarding my seizures. I could have left temporal lobe surgery, try to find another medicine (which have a ten percent chance of controlling or preventing less seizures), or they could insert some thing like a pace maker kind of thing in my chest to send electros to the brain (which have a ten percent chance of controlling or preventing less seizures), or have a strict diet to follow to prevent or control the seizures.

Comments

Re: Hi I'm a new to the site

Submitted by tinyt on Thu, 2006-11-02 - 16:57
Hi. I know how you feel my epilepsy was dorment for 18 years and when it started back up it was hardto come to terms with because I have a totaly different type now. My seizures now only happen when I am sleeping. This is the best site I have found for support.

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