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hearing voices

Thu, 04/03/2008 - 13:47

Hi everyone. 

Hope you're having a good day.  Hope I don't sound like too much of a "newbie" but that's exactly what I am.

OK, here's my story.

About 4 weeks ago my 16 year old son began complaining about being unable to sleep.  We gave him advice such as lay off the caffine .  Then, on 3/25 he had a seizure at school.  (he has since had one almost every day and two on one day.) During his seizures he has some "twitching" of his arms and legs but has always been able to get to a safe place.  He is able to answer questions with a yes or no or a nod of the head so he never completely looses control. He remains conscious through the seizures and has at least some memory of them though he is very weak afterwards. 

We've taken him to the ER (put him on keppra) and have had an MRI and EEG done.  Neither showed anything.  We're taking him to a neurologist tomorrow and having another EEG done on his orders today.

Maybe the scariest part for us has been the voices.  After he had the first seizure he told us that the reason he hadn't been able to sleep was that he'd heard voices.  Sometimes the voices are gibberish but other time they tell him things (in his own voice) like "your friends dont' really like you" or that the voices are going to hurt his friends of family.  They never tell him to do things and he knows the voices aren't real.

I've read about aura's and know some folks hear voices with seizures, but haven't been able to find much to tell me what the voices actually usually say.  Is what my son is hearing common? 

His behavior hasn't changed except he has become even more attached to his friends/family.  He's a great kid and everybody loves being around him, but this is scary stuff for all of us. 

Any "words of wisdom" from the voices of experience would be much appreciated. 

Comments

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Hi I have had epilepsy since

Submitted by Kimmy_5a1a42e0ddc24 on Sat, 2017-11-25 - 23:28
Hi I have had epilepsy since I was a little girl and I still have it and I get voices in my head going off all at once when I have a seizure it's hard to tell what the voices are saying because they are all going off at once it sounds like being in a large croud at a conert I still don't know what the voices are saying if anyone has any information on what the voices might be saying can u let me know please 

it is a little bit late but ı

Submitted by BerkayTalay17 on Sun, 2019-06-02 - 12:03
it is a little bit late but ı can say something. I experienced some voices like you when ı was 15. ı do not remember all voices but ı tried to focus and solve a voice. the last voice was always the same. In Turkish: Öyle yapmasınlar onları, means do not do this thing like this and ı obeyed this rule.ı was doing something which could not be accepted as good behavior. ı did not do that thing ı and now ı am 21 and ı am healthy. Maybe it was a sign that we must change something in our lives. ı don't know your religion but ıf you are a religious person you can understand what ı am saying. ıf you reply ı will be happy because ı am still wondering this mystery, maybe ı was not right. It just a disorder that makes our lives harder.

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