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First seizure yesterday at 31 (in my sleep)
Thu, 05/22/2008 - 16:51I am new to this site and not sure where to post this so I hope this is a good area, where people read this and can offer some advice.
Yesterday morning around 5am my husband was woken by the sound of me apparently choking. He turned on the light and my body was in a seizure (muscles all stretched out in arms and legs, head back, eyes rolled back in my head) and turning blue, also foaming at the mouth. He called 911. By the time they arrived (about 7 minutes by his estimate) I was out of the seizure and in a heavy sleep.
When I woke up, I freaked out because there were 2 EMT's in the room trying to talk to me and I had no idea what was going on. I was in a very confused/scared state and passed back out within 30 seconds. I'm told that they got me out of bed and walked me down the stairs to a stretcher waiting, then transported me by ambulance to the local hospital, none of which I remember.
They ran a few tests at the hospital and decided to transport me to the city an hour away for further testing. I had a CAT scan and EEG done. The good (?) news is that both came back clear, no tumors and no signs of epilepsy on the EEG.
So now what?
I am going back in about 2 weeks (waiting for the appointment) to have a second EEG done, this one where I have to stay awake the whole night before so that I am extremely tired for the test. If that one doesn't show any epileptic signs I'm not sure what's next. It's "only" one seizure but one too many for me!
I have an aunt, uncle (brother and sister), and cousin who had epilepsy in their younger years that they outgrew so I guess that is why the dr's are doing further testing, because of the possible genetic link.
Anyone have any thoughts for me, advice?
I'm 31 and been having
Submitted by Datgurl502 on Mon, 2017-05-08 - 09:07
I'm 31 and been having seizures for 3 years. Ugh can't no one tell me nothing. Reading made me feel a little better. I don't feel alone like no one understands me and what I'm feeling going through. I'm tried body at the same. It don't feel like me anymore. I'm trying to work, pay bills, single mother and deal with all this. No one understands Idk some days if I can. Some days I'm great but other days my body won't let me. My 13 year old son takes care of me n that's sad it should be the other way around. When I have the dumb things and weeks after its like starting everything over. I can't remember at of things it takes me alwhie to be like oh ok I remember or I may just not. That hurts me more then anything. I'm struggling with this been hiddenjng how I really feel bc I feel like ppl look at me like she's faking. So I keep all systems all feelings to myself. Thanks for listening you guys. Thanks I know someone out there understands....thank u thank u