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Epileptologist
Thu, 02/15/2007 - 00:00Topic: New to Epilepsy.com
Hoping someone can give me some insight before my appointment this coming Tuesday. We've tried a number of meds so far and unfortunately I haven't done well with them in the past. Some have given me some nasty side effects including the Stevens-Johnson horror. I'm currently on Topamax 400mg daily and until recently was doing well. However, within the past few months my seizure activity has been increasing and my last EEG showed frontal lobe activity. My neuro is referring me out for help to get these seizures under control. When I was with her I didn't know what questions to ask. She said he specialized in epilepsy. I've done some research on this site now. Does an epileptologist only come into the picture when a neuro throws up their hands in frustration and yells "help"? Do they work with meds and by the time you get to one are you at the point where you may need to consider implants or surgery. Of course, each is case by case senario. I know this is long, and I'm not afraid. I'd feel better with some knowledge. I'm very comfortable with my neuro. I've "fired" two others and searched until I found her. She's wonderful for me. She would have answered all of my questions if I had known to ask them!
Comments
Re: Epileptologist
Submitted by lisaltstheresa on Thu, 2007-02-15 - 11:02
Make sure you write all your questions down before hand. Just dont be afraid to ask.
I have been with an epileptologist for about 16 years now. She just changed over as a neurologist once again. But she spent most of her doctor days as an epileptologist. And a very good one I may add.
So just make sure you are prepared before hand write everything done, your seizure calendar..
good luck
lisa
http://www.sleep-safe.co.uk/id90.htm
http://health.groups.yahoo.com/group/EpilepsyApproach1/
Re: Re: Epileptologist
Submitted by Tish on Thu, 2007-02-15 - 12:18
Thank you for your suggestions. I'll write everything down. Funny, I've never been advised to keep a diary so I have nothing like that to bring. I can describe my seizure activity --- what I remember, naturally. Guess that will have to do. I started with my first neurologist 5 yrs ago and have been with this gal for 2 yrs now. I've changed my lifestyle dramaticly and need to get back on track. My neuro says she's not releasing me to him just sending me to him for his insights. I've been on 6/7 meds and can only accept topomax. Guess I just got carried away with the info on this site. Thanks for your help!!
Re: I am glad you feel better.
Submitted by Tish on Sun, 2007-02-18 - 10:18
Thanks for the advise. Seems that I've been dealing with this for all of my life but didn't know it. I've been with neuros for almost five years now--some good and some not so good. Guess I was jumping the gun. Glad there's people like you out there to talk to! Have a great day and smile often!!