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do I really need to treat partial complex?

Thu, 09/28/2006 - 19:35
Hi, I am looking for some opinions as my neuro evaded this question. I was diagnosed with partial complex seizures, fronto-temporal lobe epilepsy. I have only had 2 seizures during the daytime in the last year. I may have had a few at night because I woke up biting my tongue. My neuro says I may not know when I am having a seizure. Is that right? Do I need to treat it if it doesn't bother me? I miss driving but it's not a huge factor. I have tried 2 meds and been allergic. I am honestly afraid to try more as they affected my breathing. I also have memory problems. Forgetting words, call my kids the wrong names, even forget I am cooking lately. Will this get better with meds? Can it get worse if I don't use meds? Does anyone know if having epilepsy is common? I am wondering how much experience my neuro has with this as he never answers a single question. I am wondering if maybe he may not have many patients with it, although from what I read, epilepsy is not that uncommon. Any answers would be great. Plus, if I take the meds, how do they know when you can drive safely again? Thanks a lot for your help! Wendy

Comments

Re: Re: do I really need to treat partial complex?

Submitted by wendy girl on Tue, 2006-10-03 - 20:10
I just want to thank everyone who has replied to me. You have all been so supportful and I really need that right now. My son was also just diagnosed with have epilepsy- complex partial like me. So the 2 of us are new to this and I am feeling so overwhelmed and especially I just wish I could rewind time and skip all this seizure stuff. I don't want to deal with it anymore (but know I have to).

I tried my 3rd med and was allergic again. My son is doing well on his 1st med so I am encouraged there at least. I am thinking a lot now and notice weird things I took for granted before so maybe I am having more seizures than I realized. I go to the neuro again tomorrow and I am going to run my possible seizure list by him.

I really thank all of you for giving me your feedback and stories. It really helps me to know I have this support from others who have been thru it and can understand. Wendy

I tried my 3rd med and was allergic again. My son is doing well on his 1st med so I am encouraged there at least. I am thinking a lot now and notice weird things I took for granted before so maybe I am having more seizures than I realized. I go to the neuro again tomorrow and I am going to run my possible seizure list by him.

I really thank all of you for giving me your feedback and stories. It really helps me to know I have this support from others who have been thru it and can understand. Wendy

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