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Confused
Wed, 09/06/2017 - 11:42Topic: New to Epilepsy.com
Our 16 yr old son had his first possible seizure 5 months ago. We found him face down on the floor mubbling and disoriented and he had trouble breathing in his bedroom at 7am. He said only thing he remembered was the left side of face was numb and a loud noise in his ear and he passed out. He was sent to the hosptial they did ct scan and cleared him. 2 months later we actually witnessed what looked like a grand mal seizure " shaking in bed, foaming at mouth, eyes open and roll back in head, muscles tighten and than he tries to crawl off bed to floor and turn muscles turn to jello. It was around same time in the morning. We have been to a neurologist and cardiologist and have had a 24 hour test on the heart and brain/MRI/Eeg/Ekg/every blood test possible and everything is normal. We just did a 3 day nerologist video sleep study in the hospital and everything looked normal. After the 3 day hospitalized study the nerologist thinks it could be Neurocardiogenic syncope. We met with the other neurologist in the group practice and he says Epilepsy. We have him on low dose of keppra and while he sleeps he awakes sometimes and sits up and has a hard time breathing for few seconds. Everything happens before he goes to bed or on awakening. Any feedback would be great. Thank you.
Comments
Most epilepsy symptoms show
Submitted by mereloaded on Sat, 2017-09-09 - 10:29
Most epilepsy symptoms show up during asleep/awake transitions and that is why during eggs they want you sleep deprived so the patient hopefully goes to sleep during the test and measure brainwaves before, during and after sleep.My son has had all normal test, and we are on year five now, and believe me, he IS epileptic.
Thank You for all the
Submitted by Blg123 on Sat, 2017-09-09 - 19:15
Thank You for all the comments. They now have him at 500 twice a day on Keppra. The episodes happen in the morning about an hour before he wakes, and has had one episode that looked like a grand mal seizure from what we saw. He says now when he sits up he thinks he will have shortness of breath but then he doesn't and he feels fine in a second. Could it be the higher level of keppra is working or the vitamins we put him on? One other thing that happened after a 2 hour nap during the day he woke up all sweaty and stumbled down the hallway and was using the wall to hold himself up. We sat him down and he was confused and out of it, and would talk to us but he didn't recall the past few days.... about 5 min later everything came back to him, and he was completely fine.
I have learned that Epilepsy
Submitted by mandaw84 on Thu, 2017-09-07 - 21:54
I have learned that Epilepsy is unpredictable. I have read a lot on epilepsy and Unfortunately, they cant really pin point anything because there is still so much to learn. Also everything that I have read on epilepsy and if you have more then one seizure in your life you have epilepsy but there are several different kinds of epilepsy. This is what I have read on several epilepsy websites and my neuro. I have epilepsy but I have a generalized epilepsy and there are so many more. I used to be on Keppra but I had to switch to a different medication because I didn't work for me.