Why am I always cold?

Re: Why am I always cold?

Submitted by ROCKNROLL on Tue, 2008-02-19 - 23:57

MY BLOOD PRESSURE STARTED RUNNING SO EXTREMELY LOW, I HAD TO START TAKING PRESCRIBED MAGNESIUM OXIDE 1600 MG A DAY. I DON'T KNOW IF THAT HAD ANYTHING TO DO WITH THE SEIZURES, BUT YOU MIGHT CHECK WITH YOUR DOC. ALSO, HAVE YOU HAD YOUR THYROID CHECKED? THAT CAN MAKE YOU SO COLD THERE IS NOTHING BUT HORMONE REPLACEMENT THAT CAN MAKE THAT GO AWAY. SINCE SO MANY CRAZY THINGS ARE HAPPENING WITH MY BODY, I CAN'T REALLY PIN DOWN WHY MY FEET AND ANKLES ARE ALWAYS REALLY COLD AND I CAN'T EVEN FEEL IT. I ALSO CAN'T SAY IF MY THYROID IS CAUSING THE CHILLS AND MAKING MY FEET SO COLD AT NIGHT IN BED, THAT I CAN'T SLEEP. GUESS WHAT I AM SAYING IS THAT THERE COULD BE A VARIETY OF THINGS MAKING YOU COLD, AND A THOROUGH (SP?) EXAM WITH BLOOD WORK MAY BE IN ORDER. SAYING THAT, I HAVE BEEN COLD ALL MY LIFE, WHICH IS WHY I LIVE IN THE DESERT OF AZ. WHERE THE TEMPS GENERALLY ARE GREAT! BUT I STILL KEEP ON FREEZING.....UGH. HAVE YOU TALKED TO YOU DOC? JAN  

Re: Why am I always cold?

Submitted by Seruzies on Wed, 2008-02-13 - 23:52

I don't know where to begin about being cold. My E began when when I lived out west, and I'm pretty sure it had alot to do with not eating right. I'm not sure that's how it started, but that's when it showed it's ugly face. I lived in the southern NV desert, and for reasons I allowed to get out of my control, I wound up back in NE PA. (I don't think I need to say anything more about cold.) I worked outside in NV most of the day, and loved the sunshine and heat. The times I did go inside, the AC was like going in a walk-in cooler. There were times I would put a jacket on when I went inside! I even slept on a heated waterbed at home, and wore 'jammies' when I went to bed. The cold and humidity has been a shock to my system, and my seizure frequency has more than tripled. I have friends and family that live out there, and have told me I can stay with them until I get on my feet if and when I want to move back out. I was recently put on disability, and once I can get a few things straightened out, I'm moving back out, or I'd rather die than spend the rest of my life here. If anyone i.e. friends, family, Dr's, ever try to tell me that environment doesn't make a difference, I let them know, they have never lived with Epilepsy and experienced one extreme to the other. I think my Dr finally understands now that he has my records from out west. Any time a seizure did wind me up in the hospital, it shows in my records where I was constantly asking for extra blankets or to have the heat turned up. I wasn't able to bring my waterbed, and sleep with a heating pad wrapped around my feet, and 3 layers of clothing. I hate cold, and if I could afford to move away from it and spend the rest of my life away from it, I'd leave now. Yes cold does effect Epilepsy, I'm living proof. I take Lamictal and Dilantin, and never had level problems or side effects out there.      

Re: Why am I always cold?

Submitted by banffgirl on Thu, 2008-02-14 - 13:30

i am on lamictal and keppra and estrogen cuz of hysterectomy in my mid 20s, i am now aproaching 50. no my bp runs 115/65. i dont know if its the meds or not. but i use to be hot natured for the 20 years i was on tegretol from 25 till 45 when my sieures went out of control, now i am cold constantly and after a tonic clonic siezure i am freezing. i just had a vns implanted last week, will be turned on next week, since i am still have lots of seizures. starting beginning of march we are changing the keppra to topamax and we will see if the keppra is the culprit. here's to warming up!!!!!

banffgirl