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what to do next? need thoughts

Wed, 05/25/2005 - 15:10
It is raining and not my favorite kind of weather.so I am feeling even more down. I saw my Dr. on Monday. We went over how I was doing on the three meds. Which are keppra 1500mg , trileptal 1800mg and lamictal 100mg per day. Given that when I increased the lamictal to 100mg am and pm I felt my heart racing and could not sleep I had to go back to 5o am and pm. We had hoped to remove trileptal and replace it with the lamictal yet this does not look possible. My body is soo sensitive to meds.So my Epileptologist asked me" what do you want to do, none of the drugs are really at theraputic but your body can not tolerate the many side affects?" Iknow she is probably feeling as fusturated as I am as we have tried almost everything. I know I pretty much get to decide the route to take at this point. So I am leaning toward going back to the trileptal and Keppra and try to up on the dose of the trileptal. And see if this works better this time.I feel kinda fusturated. I have been on 9 different drugs and notice my body is tolerating the newer drugs much less than the others I use to take but now can not take. So my goal is to get onto two drugs.My guestion is for those with simple partial and complex seizures who have refractory epilepsy, bilateral seizures and temporal lobe focus. Are there any out there who have all this andif so what kind of drugs are you on knowing we all react ot meds different. ?Also what would the point of me staying on 100 lamictal a day keppra 1500 and trileptal 2100 a day if I have about the same control on two drugs as on three drugs? Open to supportive feedback.Hope some are having sun though not too hot. send a bit this way!!

Comments

RE: what to do next? need thoughts

Submitted by angel_lts on Thu, 2005-05-26 - 06:36
Cedar I have gotten rid of simple partials by taking omega three fatty acids. I got rid of 234 of them a month. ALso trilepatl maybe causing low sodium and it is causing these simple partial seizures. Try keeping up with your sodium. I drink gatorade to help with that.Lisahttp://health.groups.yahoo.com/group/EpilepsyApproach/

RE: what to do next? need thoughts

Submitted by valhdz on Thu, 2005-05-26 - 08:28
You are taking way too much meds. If i was you have your dr. take you off slowly from your first med. and decrease Keppra to only 1000mg twice a day. increase your lamital to 200mg twice a day, seems to be working pretty good for me.

RE: RE: what to do next? need thoughts

Submitted by Cedar on Thu, 2005-05-26 - 15:46
Thanks but my body is very veryu sensitive to all the drugs which is why I can not take Keppra 1000mg 2 times a day. Also lamictal makes me have heart racing and can not sleep. Trileotal has it's side affects also. Thanks any way .

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