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Switching from Keppra to CBD Oil

Mon, 06/05/2017 - 12:06
Hello everyone! My name is Julia , and I am 19 years old. I have been doing some research for a long time, and have kind of given up with doctors, and was just hoping to get some advice from other people. Anyways, I got my first seizure when I was a freshman in high school, and was sent to the hospital. They said everything was fine, and that all the tests they ran came back completely normal, so no medication was needed. The doctor even said if I get another one, to not worry about it. Well fast forward to junior year I got sick with the flu, and was taking various forms of antihistamines (dayquil/nyquil/theraflu). I guess I was taking too much medication, so I ended up having 2 seizures. My mom called 911 and I was sent to the hospital. When they were wheeling me to get an MRI, I had another seizure. So they ended up giving me an IV to stop my seizures. And then they asked my mom if we would like to get me started on some medication. Not knowing any better, we agreed to keppra. And I started out taking 500 mg twice a day. From the very beginning, I began to have mood swings (very angry and upset), fatigued, not able to focus, and weight gain that lead to my depression. Eventually I had enough, even though I didn't have any seizures while taking keppra, I had asked to switch medication. So they suggested that I try vimpat. Even worse. The first day that I took it, I almost immediately had a seizure. And my mom did not like the idea of me having another one, so we switched back keppra the next day. So eventually I gave up and stayed on keppra for a while. I asked my doctor later on (about a year) if I was able to get off/lower my medication, and he told me no, not until I have been seizure free for like 5 years. But I refused to listen, and demanded to try to get completely off. So I began to lower my medication to 250 mg twice a day instead of 500 mg twice a day. Everything was good, then lowered it to 250 mg once a day. Everything was fine, until I was on my final day of being completely off, and I had a seizure. So my doctors told me that since I was fine on the 250 mg twice a day, to keep me on that amount. So that is what I stayed on, and am currently on. So basically I again, became seizure free for the whole time until one night I went to my friends house, and she had cat that I didn't know about, and I am very allergic. Not knowing that benadryl was an antihistamine, I had another seizure. Everything was fine, just had one and done. But feel as if I know what the causes of my seizures are- antihistamines (and the vimpat...), and I strongly believe that I do not need medication. The amount of depression (somewhat caused by weight gain) that I constantly feel is not healthy, and I will do just about anything to get off of pharmaceutical medication. I hear a lot of good things about CBD oil, and how some people are able to get completely off their medication while using CBD when weaning off. I understand that my situation is minor, and that the amount of keppra I take is very low, but I still would like to try to get off medication. And I would not want to try switching/mixing different anti-seizure medication. I was just wondering if anyone has had any luck with CBD oil, or has any advice for me regarding getting completely off of medication, since I haven't really heard anyone that has a similar situation like me before. Thank you in advance!

Comments

Dear Julia, I use medical

Submitted by Kevin50 on Wed, 2018-12-12 - 15:00
Dear Julia, I use medical marijuana and Keppra to control my seizures. I’m a black belt in martial arts and do some form of physical activity everyday, even if it’s just a walk. I was diagnosed with epilepsy in 2008. I stopped smoking marijuana (which I loved) in 2002 because of where alcohol and cocaine had left  me and misinformation from people addicted to coffee and cigarettes in Narcotics anonymous with other mental issues that had nothing to do with drugs (hypocracy$$$). But I did go back to college thanks to NA & Karate. I’m from the ghetto of the south Bronx nyc and  you have to sink or swim here.    I never had seizures but my younger brother who was born with Rubenstein Tabi Syndrome had severe Grand Mals that didn’t cease until I became a teen and started smoking cannabis around him. He loved it. I’m talking the 80’s when cannabis was treated by the police like crack!! Thank God I can look back & laugh now... I later found that Epilepsy is common in my unconnected family  that talks about once every ten years. Thank you slave segrageted South Carolina.  Anyhow, I got “self rightouse holier than thou” and put down everything including cannabis... life was and is great!! But then the stressful headaches  and seizures started 7-8 years later. Wife and children gone, job gone, mom died, and my little brother who was dying because of  complications from a condition he was born with and nursing home abuse from perverted “Medical Pracitioners”, was now my responsibility. Life is funny like that. I laugh to keep from having a seizure.  My advise to you Julia is to strap up and strap on. Everyone’s life is different and you have to do what works for you. I found through trial and error that I can get by with 500 mg of Keppra twice daily if I can smoke cannabis  without others becoming offended. Me personally, I don’t give 2 cents when it comes down to social exceptability or my life. But I try to respect others because I remember when I was on my NA BS, everyone who smoked cannabis was beneath me in my crazy world. I went back to college and it was the kids that taught me that cannabis stops seizures. I worked on my computer skills and did my own research. Knowledge is Power!! The rest is history! Today I’m seizure free for the most part, my car is parked, my bills are paid and I now work at that college library and because of the Information Age we now live in, my coworkers understand, accept, and love me for who I am without passing judgement. Long as I can do my job. Like I was saying, I can take one 500 mg tablet in the morn and one  b4 bed with some cannabis, and a nutritious diet, and go seizure free but because I’m an athlete and push my body hard sometimes, I now take 1000 mg of Keppra in the morn and the same at night along with cannabis. I tried lowering and eventually stopping Keppra to self medicate with cannabis but as soon as the stress of a cop stopping me again in the hood triggered a seizure, I went back to Keppra. I’m not suggesting that you do what I did but I am saying that you have to find and do what works for you. Not even the Epilepsy Foundation or these “Nuerologist” with all these degrees know enough about epilepsy yet. A disease which predates theBible and in which cannabis is prescribed on several occasions but Drs ignore. For me, java and a joint with Keppra and breakfast and for dinner, brown rice, turmeric curry rosemary chicken or goat, plenty of broccoli, okra, corn, beans  etc a joint, and plent of water excercise and rest. Meditation as well also helps. It works for me but I had to dig and search inside of me, not google for that one. Good Luck Julia. I’ll be praying for you. #seizure free #read Fyodor Dostoevsky’s work when you have time. He was a famous Russian writer that battled with epilepsy in Europe in the 1800’s b4 meds. Like Van Gogh, he expresses his life with epilepsy through his work/art. They had to find their own answers too and I now believe this led them to their Greatness!! I use to look at my Epilepsy as curse but now see it as a blessing. 50 and life is freaking great!!

https://itunes.apple.com/us

Submitted by Kevin50 on Wed, 2018-12-12 - 15:20
https://itunes.apple.com/us/podcast/the-cannabis-reporter-radio-show-podcast/id1118707725?mt=2&i=1000425182187

Dear Julia, I use medical

Submitted by Kevin50 on Wed, 2018-12-12 - 15:20
Dear Julia, I use medical marijuana and Keppra to control my seizures. I’m a black belt in martial arts and do some form of physical activity everyday, even if it’s just a walk. I was diagnosed with epilepsy in 2008. I stopped smoking marijuana (which I loved) in 2002 because of where alcohol and cocaine had left  me and misinformation from people addicted to coffee and cigarettes in Narcotics anonymous with other mental issues that had nothing to do with drugs (hypocracy$$$). But I did go back to college thanks to NA & Karate. I’m from the ghetto of the south Bronx nyc and  you have to sink or swim here.    I never had seizures but my younger brother who was born with Rubenstein Tabi Syndrome had severe Grand Mals that didn’t cease until I became a teen and started smoking cannabis around him. He loved it. I’m talking the 80’s when cannabis was treated by the police like crack!! Thank God I can look back & laugh now... I later found that Epilepsy is common in my unconnected family  that talks about once every ten years. Thank you slave segrageted South Carolina.  Anyhow, I got “self rightouse holier than thou” and put down everything including cannabis... life was and is great!! But then the stressful headaches  and seizures started 7-8 years later. Wife and children gone, job gone, mom died, and my little brother who was dying because of  complications from a condition he was born with and nursing home abuse from perverted “Medical Pracitioners”, was now my responsibility. Life is funny like that. I laugh to keep from having a seizure.  My advise to you Julia is to strap up and strap on. Everyone’s life is different and you have to do what works for you. I found through trial and error that I can get by with 500 mg of Keppra twice daily if I can smoke cannabis  without others becoming offended. Me personally, I don’t give 2 cents when it comes down to social exceptability or my life. But I try to respect others because I remember when I was on my NA BS, everyone who smoked cannabis was beneath me in my crazy world. I went back to college and it was the kids that taught me that cannabis stops seizures. I worked on my computer skills and did my own research. Knowledge is Power!! The rest is history! Today I’m seizure free for the most part, my car is parked, my bills are paid and I now work at that college library and because of the Information Age we now live in, my coworkers understand, accept, and love me for who I am without passing judgement. Long as I can do my job. Like I was saying, I can take one 500 mg tablet in the morn and one  b4 bed with some cannabis, and a nutritious diet, and go seizure free but because I’m an athlete and push my body hard sometimes, I now take 1000 mg of Keppra in the morn and the same at night along with cannabis. I tried lowering and eventually stopping Keppra to self medicate with cannabis but as soon as the stress of a cop stopping me again in the hood triggered a seizure, I went back to Keppra. I’m not suggesting that you do what I did but I am saying that you have to find and do what works for you. Not even the Epilepsy Foundation or these “Nuerologist” with all these degrees know enough about epilepsy yet. A disease which predates theBible and in which cannabis is prescribed on several occasions but Drs ignore. For me, java and a joint with Keppra and breakfast and for dinner, brown rice, turmeric curry rosemary chicken or goat, plenty of broccoli, okra, corn, beans  etc a joint, and plent of water excercise and rest. Meditation as well also helps. It works for me but I had to dig and search inside of me, not google for that one. Good Luck Julia. I’ll be praying for you. #seizure free #read Fyodor Dostoevsky’s work when you have time. He was a famous Russian writer that battled with epilepsy in Europe in the 1800’s b4 meds. Like Van Gogh, he expresses his life with epilepsy through his work/art. They had to find their own answers too and I now believe this led them to their Greatness!! I use to look at my Epilepsy as curse but now see it as a blessing. 50 and life is freaking great!!

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