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Should I take medication?

Mon, 05/23/2005 - 11:13

Hi, I am a 22 year old girl living in Queensland Australia, I have been having seizures since I was about 16 years old, all of them Grand Mal with total black out and memory loss afterwards, confusion, well you know the drill.

Anyway, I only generally have one every eight months , which is pretty mild and that is why I am wondering if I should take medication, or not.I had another seizure a week ago, my first in ages, and my doctor told me I should be on Tegretol. But I dont know, Ihave read about the side effects and it really scares me, and I think that maybe if I just eat really well, and look after myself I should be fine......

I dont know, can anyone give me any advice? I dont know what I want to hear, but are all those side effects true? does it really stop the seizures totally? please help

Comments

RE: RE: Should I take medication?

Submitted by katika on Tue, 2005-05-24 - 13:07

While I am glad your friend who has gran mal seizures was successfully treated with Depakote, these medicines are serious in nature and  it is a good idea to do lots of research!  For example, Depakote is listed as "unsafe" during pregnancy and has a list of serious possible side effects.  My child who had different types of seizures at various stages of her life has both benefitted from some medications  and at times medications for epilepsy made her situation worse.  It is not as simple as popping in a pill. . . Of course if you have the seizures furhter apart you may have to wait sometime to see if they are controlling or reducing the seizures, which again is a complicated matter.  May I suggest to you a site that will give you a lot of useful, pharmaceutical information on seizure medications:  visit:  www.emedicine.com/NEURO/Topic74.htm by Anthony M. Murro, MD.  I hope you find the site useful. I think it could prepare you in asking more informative questions from the medical community and exploring all your options be it medicine or otherwise. 

 

 

While I am glad your friend who has gran mal seizures was successfully treated with Depakote, these medicines are serious in nature and  it is a good idea to do lots of research!  For example, Depakote is listed as "unsafe" during pregnancy and has a list of serious possible side effects.  My child who had different types of seizures at various stages of her life has both benefitted from some medications  and at times medications for epilepsy made her situation worse.  It is not as simple as popping in a pill. . . Of course if you have the seizures furhter apart you may have to wait sometime to see if they are controlling or reducing the seizures, which again is a complicated matter.  May I suggest to you a site that will give you a lot of useful, pharmaceutical information on seizure medications:  visit:  www.emedicine.com/NEURO/Topic74.htm by Anthony M. Murro, MD.  I hope you find the site useful. I think it could prepare you in asking more informative questions from the medical community and exploring all your options be it medicine or otherwise. 

 

 

RE: RE: RE: Should I take medication?

Submitted by pongosmommy on Tue, 2005-05-24 - 13:41
katika,Thank you so much for posting that site. There is a lot of helpful information on there.Personally I have been taken off all AED's due to the side effects... we are going to try a different approach to see if my seizures will stop completely. I have other health issues to deal with, and have to take meds for those. Next month I shall see the Accupunturist (see if he can stop my pain) and see what the East/West Clinic has to suggest.Dayna

RE: RE: RE: RE: Should I take medication?

Submitted by Yakota on Wed, 2005-05-25 - 12:36
Dayna. Hi. How long have you been off AEDs? What are you doing to control seizure? The reason I ask is that I too have gone off all AEDs. If there is anything out there that I am not doing or have not tried that might help eliminate seizure then I want to know about it. Perhaps you doing something that I too might find beneficial in eliminating seizure. How long have you been going through accupuncture treatments? I have had the accupunture. ICK!!! I don't like the needles. There is something to it though because it did help. It was just an unpleasant experience with the sticks that's all. (It really was quite painless putting the needles in. I just got the heeby-jeebies while they left som many of them in for so long!!! A seizure free day to you and all. Blessings. Linda.

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