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Medication does not control absence seizures

Wed, 05/05/2010 - 21:34

Medication does not control absence seizures for my son. 

My 9-year-old son has had generalized absence seizures for about 18 months now.   He has never had any other type of seizure.  He started out on Zarontin, which controlled the seizures but made him feel terrible and caused stomach pain.  He then took Lamictal which successfully controlled his seizures with no side effects for a year.  Then, it gradually stopped working for him, even on the highest dose for his weight.  We then switched him to Depakote, which left him feeling bad and having stomach pain as well.  His blood work confirmed that it was too much for him, even on a low dose.  Now we are trying Lamictal again, and have tried adding Klonopin, neither of which seems to be helping.  He is still having 15 to 20 absence seizures every day.  From what his ped neuro has said, and from the research I have done, there just isn't anything else out there for his type of seizures.  Is anyone else going through this?  Or found another answer?  It is very frustrating for him and for me. 

Comments

My son is 11 1/2 and he has

Submitted by alassiter82@yahoo.com on Wed, 2015-08-12 - 20:47
My son is 11 1/2 and he has had generalized absent seizures since he was about 1 or so. He has been on depakote, limictal with no help. He is on valporic acid and banzel and he has a device in his chest that's supposed to help but nothing is working. 

My daughter has been

Submitted by mair_5ad776c4dfed6 on Wed, 2018-04-18 - 12:48
My daughter has been difficult to treat. She is on a combo of lamictle and onfi. She was seizure free for a little over a year. Although the combo has stopped working for her it may work for your son.

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