Keppra & Hair Loss

Same for me krissy...exactly the same story...I’m truly sorry :(I’m on the one a day multi vitamin and 5000 biotin once a day. Been on it for about a month and hair seems shinier and bouncier...but I’m still shedding like frickin crazy:( I promise I’ll come back and share if I find out ANYTHING to help...  :(

OMG you sound like my long lost twin honey. I’m 59. At 17 I was a passenger in a car wreck that broke my back. 23 years ago the daily pain I had always had since the wreck...got even worse. And it was a new type of pain. I figured I had just done too much. Well-after 4-6 weeks of suffering my husband found me sobbing while I was mopping the floor...we had a back X-ray and found out that the hardware of the Harrington rods they had put in my back had broken away from their original placement...You should see my X-ray. It literally looks like pick up sticks cos nuts and bolts are all over my back. They can’t remove them surgically because nerves and scar tissue have grown around the hardware...The supposed best neurologist surgeon in my area said he would literally have to dig the hardware out and I’d probably end up in a wheelchair :(.   So 23-ish years ago they put me on everything from ultram to OxyContin...either I was high as a kite puking or no relief...   :( Finally after 3ish years of being basically a lab rat....they put me on the fentanyl patch. My god I’ll never ever forget the first day I had a patch on...I was at a restaurant with my cousin...I still remember looking at the wooden chair we would have to sit on...no comfy booths were available. I didn’t say a word to my cousin but I knew I’d pay for sitting on that hard chair while we had dinner...I swear I’ll never ever forget this feeling...but about 20 minutes into the meal I literally looked at my cousin and started to cry...it was one of those good cries...because I realized.... I DIDNT HAVE PAIN?!?! I couldnt wait to get home and tell my family. Well 6-7 months ago I was weaned off the level 75 fentanyl patch...that’s not a very high dose for someone on fentanyl for 15 years!?!?I been with the same pain doctor for 12-13 years...I have never ever never...failed a urine test NOR a med count. BUT because some people abuse/sell their medication...I have to pay the price :(I know my pain specialist really likes me...his MA and I met at another dr I was going to and when he relocated...she brought me with her to the current doc...I’ve known her for 15 years...she has met my hubby son and grandson...we never leave each other without saying “love you “ ....BUT my pain doctor loves his license and his wife more :(   Anddd I don’t blame him one tiny bit...I have been on a newer med called Belbuca and of course it helps a bit...but I’m never lower than a level 5-6 pain scale. I just do not understand why in the world can they send a man to the moon but they cannot create a medicine for they only genuine chronic pain? I am not one of those people that are conspiracy theorist… But… Are they not finding relief for us with chronic pain… On purpose?I’m so sorry for the rambling. I post my story for a few reasons. I hope it helps someone else out there… Whether they know they are not alone or whether it makes them think maybe their story is not as bad as it could be.The selfish reason I shared this story? I literally say prayers that hopefully a doctor or medical practitioner will see my story and somehow help me… Another reason I was so drawn to your story is because sometimes the patch would peel off of my crêpe skin. I’m getting older and my skin is wrinkly...If the patch came off… No matter how I taped it back on-it never worked as well as it did if it stayed in place. With the new opiate crisis my doctor could not order me another patch a few times a year when they came off… So I would go through the most horrible withdrawals you can imagine.  :( Sometimes when I was in with drawl… I would have seizures that landed me in the emergency room. One very very nice nurse practitioner told me that my withdrawals were absolutely much much worse than a heroin addict. Because I was on fentanyl which is stronger than heroin anyway and I hand fentanyl every day…for over a decade. She sad when I had to go through with drawls it was as close to death as you could get… And still live. :(But I’m off the fentanyl now and I have mixed emotions about even going back On it if a doctor would even trust me enough to put me back on it…At least with the fentanyl my pain level would go down to a number two to a number four… But I don’t think mentally I could live with the sheer terror that the patch would come off again and I would have to go through with drawls… I am pretty sure at my age I would not be able to survive more with drawls. :(I’m pretty much hopeless...for the 43 years I’ve had pain...I always felt like eventually the medical field would come up with something...but I’m pretty much realizing...their not...I truly hope that everyone here finds help... thank you all for sharing your experiences and thoughts...

Honey I said almost the same darn thing!How the heckkk can they send a man to the moon but they can’t create freakin meds that don’t cause HORRIBLE side effects?BTW...I’m not yelling at you with the caps...I’m older and my 13 year old grandson warned me that caps mean your yelling. And I’m yelling because of our stupid situation. And you are TOTALLY correct. Your my favorite post. I just wish so badly that we didn’t have to be on a website like this :(I sure hope your hair heals honey. Please let us know if you find anything that helps. XOXO