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Definition of 'controlled'

Mon, 09/18/2017 - 21:13
I was diagnosed with right temporal lobe epilepsy in January, based on symptoms I documented and confirmation of a spike in my EEG. My neuro put me on 150mg of Lamictal and it's helped, but I still have occasions where I'm experiencing tingling around my head (which I associate with auras) and the kind of anxiety that originally led me to the neurologist in the first place. My second EEG (taken this month) showed the same kind of spiking, but my neuro declared that the epilepsy was 'under control'. I have a background in a hard science, so I was surprised with this diagnosis because I was expecting the EEG results to not show any spiking... Is this a misconception? I'm not terribly trusting of doctors, based on past experiences... and need to do as much research on my own as possible. Otherwise they tend to 'wave off' concerns as inconsequential. So I'd appreciate hearing from others with this experience. Thank you in advance for any replies!

Comments

Apparently I'm on a

Submitted by sindarintech on Sun, 2017-09-24 - 18:19
Apparently I'm on a relatively low dose of Lamictal due to having reported memory recall issues with the 150 mg daily dose. They just put me on 300mg of Gabapentin as well, so we'll see how that works out. I haven't experienced bloating, thankfully. 

The upside of Lamictal is it

Submitted by ATLMayhem on Wed, 2017-10-11 - 23:56
The upside of Lamictal is it doesn't make you tired.  I will tell you that Lamictal never caused me memory recall issues, but having seizures sure does.  I would ask your neurologist if your seizures could be causing the memory problems.  It is also possible Lamictal is not the drug for you.  There are many more.  If it were me I would demand a plan of action.  Either we increase, switch meds, or stick with this for x period of time.  If the later, if no improvement at the end of that time, make him change his plan, or find someone who will work with you better.  Hopefully, everything works out.

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