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8 year old various medicines - losing help

Wed, 08/09/2017 - 05:01
Hi all, need advice from your experience. Son diagnosed with partial complex seizures at the age of 4 on 2013. The 1st two years child neurologist put him on trileptal(oxcarbazepine) and it was under control for 2 years. The medicine was stopped after 2 years on 2015 however the seizures relapsed immediately. Doctors advised to continue on trileptal however the 2015, 2016 it was never under control and had repeated seizures mainly during sleep time atleast 5-6 times in a month. Then doctors tried lamotrigine and it was giving him severe tremors for the full body and we tried sodium valproate in both these medications it was not under control. Levipil was tried and it increased the seizures even more... Right now our family is going through immense stress due to this uncontrolled seizures and the poor little child is suffering due to side effects. Every change in medicine takes 2-7 weeks and that time is totally stressful and full anxiety for us.. Currently the doctor wants to go back again on trileptal and sodium valproate combination and we are worried like hell... Can some body shared what worked very well for your 7-8 year old so that we can get some idea on how to take this further along with the child neurologist.

Comments

Has your epileptologist

Submitted by zacksdad on Wed, 2017-08-16 - 22:45
Has your epileptologist suggested a extended video EEG?  My (now) 8 yo son had a ten day one a few years ago and that's how we got our diagnosis.

We have had couple of video

Submitted by SV on Thu, 2017-08-17 - 03:59
We have had couple of video eeg in the recent past but they were for an hour only. Right now the doctors are trying various medicine combinations so that we have seizures and side effects under control. No luck so far..

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