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2 YEAR OLD SON I NEED HELP

Tue, 07/12/2005 - 17:09

Topic: Medication Issues

HELLO I HAVE A 2 YEAR OLD SON THATS HAS DX (INFANTILE SPASMS ) MONOCLOYIC SEIZURES AND I NEED SOME INFORMATION ON MEDS AND VNS. MY SON BJ HAS HAD SEIZURES FOR 8 MONTHS AND HE IS ON KEPPRA, KLONIAPEN, AND ZONOGRAN. HE WAS ON TOPAMAX BUT WOULDN'T EAT AND GOT BACK DOWN IN A SIZE 6 MONTHS. THE DRS WANT TO CHANGE THE ZONOGRAN TO DAPOKOTE AND IF HE DOESN'T GET BETTER THEY WANT TO DO THE VNS. HE HAS MONOCLOYIC SEIZURES 5 XS A DAY WITH 5 TO 25 CLUSTERS AND ITS NOT BETTER WITH MEDS ITS GETTING WORSE HE HAS HAD 2 SEIZURES THIS WEEK AND IM NOT SURE WHAT KIND? HE WILL NOT RESPONED TO ME AND ACTS LIKE HE IS OUT OF IT FOR ABOUT 20 MINS. HE GO'S LIMB (LIFE LESS) I HAVE TO GIVE DIASTAT IF ANYONE CAN HELP PLEASE DO. MY SONS DX HE CAN WALK AND SAY ABOUT 30 TO 40 WORDS HE'LL BE 3 IN NOV. THANKS BJ'S MOM SHIRLEY

Comments

RE: RE: 2 YEAR OLD SON I NEED HELP

Submitted by SHIRLNEWT1 on Fri, 2005-07-15 - 01:21

HELLO..........THANKS AGAIN FOR ALL YOUR INPUT ALOT OF PPL I MAIL THRU E-MAIL. THIS IS MY FIRST POSTING AND IM VERY GLAD I DID. ITS VERY HARD DAY TO DAY HR TO HR WATCH YOUR SON HAVE THIS SEIZURES AND TRY TO MAKE CHOICES THAT YOU HAD NO IDEA ABOUT A YEAR AGO. MY HEART GOS OUT TO ALL OF YOU AND I HOPE TO KEEP IN TOUCH AND READ THESE QUESTION AND LEARN AS MUCH AS I CAN. I WISH THERE WAS MORE DONE FOR PEOPLE WITH (PROBLEMS ) REALLY NOT SURE HOW TO WORD IT............BJ'S MOM SHIRL

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