Two seizures two years apart, is it epilepsy?

Is it epilepsy?

Submitted by Don’t settle do research. on Fri, 2018-08-24 - 06:07

With all the advancements I’ve researched not being ok with taking meds for epilepsy before any test just a 2 min debriefing to the doc and boom he’s telling me I have epilepsy. My tests came back normal this last time. From the beginning I had two seizures a day apart the first at home the second in ICU I was maybe 5. They put me on meds that had side effects that were horrible for a child. Eventually after countless eeg’s and tests years later they cut me lose took me off my meds and gave me a clean bill. After that till a year and a half ago I’ve had approximately 5-7 noticeable unconscious seizures. Back to the test which I mentioned all came back with all signs of not having epilepsy but I never got offered anything of what else it could be. Even with test results in my favor and spontaneous seizures they offered nothing but epilepsy and I wouldn’t settle. So tonight in my research I’ve discovered that they have identified almost 400 different seizures and not all are connected or related to epilepsy. I also discovered that 1-6 people are misdiagnosed with epilepsy and 100,000 people a year are being told they have epilepsy. After in depth research I am going way deeper into my seizures. I don’t have confirmation but with a ton of research and an educated guess I suffer from non epileptic seizures. Epilepsy is when the brain misfires and the body and brain respond with a seizure. With the non epileptic seizures it’s not caused from a misfire in the brain but things that are to the braking point mainly stress that will cause seizures that imitate epileptic seizures even to the best in the field and 9-10 docs mis read the eeg and again call it epilepsy but over and over we are seeing that the body is unique if you over stress yourself your body responds with a seizure and it’s your brain and body hitting reset before you have a stroke heart attack whatever. I’m sharing this because of all these heart braking stories and just like me your doctor hasn’t even mentioned that it might be something else cuz then they have to admit they are wrong. Well I say too bad. Stop assuming a dr. Has your families best interest educate yourself and demand your docs to do every test under the sun to find out what’s going on. If you or your child are taking meds for epilepsy and there is a 1-6 chance you might not even have it then it could explain why people are on the second third fourth meds because nothing is working. The docs come forward and say “ there is a type of epilepsy that is resisting any all meds” huh? Um no it’s not working cuz they probably don’t have epilepsy. Here is a link to get your thinking started and if you read this I hope I’m helping. Over 400 seizures and the only explanation was epilepsy til now. Good luck everybody and get educated. https://www.hopkinsmedicine.org/news/media/releases/symptoms_that_mimic_epilepsy_linked_to_stress_poor_coping_skills# Good luck to everyone. My path hasn’t been easy and at this point I feel fooled by one of our most admired figures, a Dr. maybe his fault maybe not but a year later I find out all of my symptoms fit another explanation a non epileptic explanation for my seizures and he knew about it and I didn’t. He didn’t mention anything other than epilepsy and literally he was trying to taper me from 2 tabs every 4 hours and over a month 16 pills every 4 hours without shred of evidence I had epilepsy and actually more data saying I didn’t but a doctor saying I don’t know isn’t an option so he pushes the wrong diagnosis. It’s BS and I’m outraged seeing all these worried stories and that means your doctor didn’t say anything to you either. I hope at least one person reads this and it helps because it helped me. My doctor will be looking for a new client but that’s his problem. Our problem is the responsibility to read get educated because it’s clear modern doctors just want modern greed. Good luck everyone at least we’re not alone no one is alone through this scary process. There’s just too many sheep. Don’t take anyone’s word at face value especially if it’s something this serious. I mean come on I don’t trust my neighbors I see them everyday why would I trust another flawed human with a life altering situation. No one needs to suffer you just need to ask the right questions and make your doctor earn there money hold them responsible these are our lives and our families educate yourself before you see the doctor next and ask him why he hasn’t mentioned what you will learn in the link.