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topamax and weight loss
Fri, 09/15/2006 - 21:59Topic: Living With Epilepsy - Youth
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called aneorxia) and I am reassuring her that she is just fine and it is one of the side effects.
karen
Comments
Re: Re: topamax and weight loss
Submitted by seizuregurl70 on Wed, 2007-02-07 - 23:46
Seizuregurl70
I have been on Topomax for 8 months now and lost 70 lbs. I didnt mind the weight loss due to fact The other meds left me with no energy so i sat around and ate and gained weight. Topomax was a dream! no migraines, no seizures, weight loss bring it on. Then after 4 months, i had a massive seizure. I used to have them only in my sleep this one happened while wide awake, next thing I know Im in a hospital. My hair started falling out in clumps, I started brusing, not healing properly (takes a very long time to heal from anything little thing). I feel sick all the time so I am losing more weight. They then up'ed my Topomax dosage to 500mg per day total. 8 months into taking Topomax my hair is so thin i dyed it black to dye my scalp so you cant notice it as much and i had a cluster attack of seizures last month so bad that i had to be incubated for 3 days because i couldnt breathe well on my own. I am not saying Topomax had anything to do with it but it hasnt done well by me! They have been weening me off Topomax and on Keppra 1000mg twice a day. Keppra seems to be ok except for the insomnia which has defintely gotten worse and i have a constant ringing in my left ear. Who knows everyone is different. They also started me taking Vitamin D 400IU Three times a day. i read that it can help seizures and is for the nervous system.
Good luck to everyone in this ride through medical hell. Mine just started 2 years ago at age 35 no history in the family nothing!
again be well ;)
Re: topamax and weight loss
Submitted by 2bfree on Sat, 2007-02-10 - 03:12
I lost 60 pounds in 3 months on topamax when I first started taking it. I then stopped taking it because of the rapid weight loss ( being a nurse I knew that was not good for my body as most of it was musle mass). My neurologist put me back on it but at a lower dose and with klonopin after I gained 20 pounds back. At the lower dose and with the klonopin I seem to have been able to remain seizure free and still control my weight. I feel better now and have less side effects from the topamax (except for the restless leg syndrome).
Re: topamax and weight loss
Submitted by Caligirl on Sun, 2007-01-28 - 19:27
Alexia, I take Topamax as well but I only notice that It helps me keep my normal weight balanced, it won't go higher or lower that easly. if I gain weight I will loss it right away if I exercise 2 or 3 time a week for 30 min.The only problem is that if I don't take Topamax I get frequent migranes.