Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
New to epilepsy.
Tue, 09/14/2010 - 15:11Comments
Re: New to epilepsy.
Submitted by Annie Elizabeth on Thu, 2010-11-11 - 18:06
Hey, Emi, what's up?
I'm Annie (as you can see from the little link thing), and I'm actually 22. Now, you may be wondering why I'm in the "youth issues" category.
Well, actually, it's because I tend to associate better with high schoolers. A lot of people my own age act too grown up.
But anyway. I would be more than happy to talk to you! I've been dealing with this stuff (plus anxiety and depression) since I was eleven, so I've been through the teasing and the people who THINK they're sympathizing (but they're really not), and all that.
(In my opinion, even doctors can only do so much. I mean, unless a neurologist [or epileptologist, in my case] actually HAS epilepsy, they don't know how it IS. They only know textbook stuff.)
I'm planning on starting a blog really soon, actually. And it's going to be targeted toward high schoolers with epilepsy and anxiety so that they can have somewhere (and someone) to talk about (and to) any issues they have--like with people at school. I'll post a discussion here when the blog gets launched. ;)
Annie<3
Hey, Emi, what's up?
I'm Annie (as you can see from the little link thing), and I'm actually 22. Now, you may be wondering why I'm in the "youth issues" category.
Well, actually, it's because I tend to associate better with high schoolers. A lot of people my own age act too grown up.
But anyway. I would be more than happy to talk to you! I've been dealing with this stuff (plus anxiety and depression) since I was eleven, so I've been through the teasing and the people who THINK they're sympathizing (but they're really not), and all that.
(In my opinion, even doctors can only do so much. I mean, unless a neurologist [or epileptologist, in my case] actually HAS epilepsy, they don't know how it IS. They only know textbook stuff.)
I'm planning on starting a blog really soon, actually. And it's going to be targeted toward high schoolers with epilepsy and anxiety so that they can have somewhere (and someone) to talk about (and to) any issues they have--like with people at school. I'll post a discussion here when the blog gets launched. ;)
Annie<3
Re: New to epilepsy.
Submitted by ChIbI nEkO on Mon, 2010-11-29 - 22:58
HI Emi ^_^
I understand the feeling, trust me, I'm 21 and ever since I was in the seventh I started having seizures.
It really bites that people don't understand our situation, what we feel, what happens, and everything that comes with this condition, even to the extent of people thinking you are possesed, yes...possesed. You don't need to feel bad or frustrated, remember also that parents or adults watch over you because they are worried, even my art proffesor at college watches over me XD, this is something that you will have always with you, that doesn't mean it will tie you down, if you feel that is hard to communicate about this with others then what you did here is right, the first thing I did was signing up to the epilepsy organization, the constantly send information, and many other about epilepsy for you, your friends and family to understand, I've been a memeber since the first moment I was diagnosed, then the next step would be yes, talking to your friends, remember also that this is something you can't keep quiet, at my job, college, and even church they know about my condition, since I can't risk having a seizure and not having there someone to help, so that's very important, and remember that you are not alone in this situation, you'll always have people around you like us who pass daily all of this, treat yourself how you are suppossed to,
hope everything turns out great!
HI Emi ^_^
I understand the feeling, trust me, I'm 21 and ever since I was in the seventh I started having seizures.
It really bites that people don't understand our situation, what we feel, what happens, and everything that comes with this condition, even to the extent of people thinking you are possesed, yes...possesed. You don't need to feel bad or frustrated, remember also that parents or adults watch over you because they are worried, even my art proffesor at college watches over me XD, this is something that you will have always with you, that doesn't mean it will tie you down, if you feel that is hard to communicate about this with others then what you did here is right, the first thing I did was signing up to the epilepsy organization, the constantly send information, and many other about epilepsy for you, your friends and family to understand, I've been a memeber since the first moment I was diagnosed, then the next step would be yes, talking to your friends, remember also that this is something you can't keep quiet, at my job, college, and even church they know about my condition, since I can't risk having a seizure and not having there someone to help, so that's very important, and remember that you are not alone in this situation, you'll always have people around you like us who pass daily all of this, treat yourself how you are suppossed to,
hope everything turns out great!
Re: New to epilepsy.
Submitted by hallie92 on Wed, 2010-09-15 - 18:06
Hey Emi,
My name is Hallie and i'm a 18 year old in a similar position. i recently left for college and was terrified that everyone would be afriad of my seizures and make some wrong assumptions. I was only recently diagnosed (even though i've had seizures since i was about 8) so not very many people know about it yet but it seemed like everyone i told was always watching me thinking i was about to fall over and start twitching right in front of them. Recently i have found that if i fully explain to them how my seizures work and how to pull me out of one they seem to calm down. I have discoved that the biggest reason why people are afraid of people with seizures is because they don't understand, once you explain it to them and take it all in good humor they begin to realize that it is not a life-or-death situation and that many people live very normal lives with seizures. I hope this helped you, please feel free to contact me as i am also new! :)
Hallie K.
Hey Emi,
My name is Hallie and i'm a 18 year old in a similar position. i recently left for college and was terrified that everyone would be afriad of my seizures and make some wrong assumptions. I was only recently diagnosed (even though i've had seizures since i was about 8) so not very many people know about it yet but it seemed like everyone i told was always watching me thinking i was about to fall over and start twitching right in front of them. Recently i have found that if i fully explain to them how my seizures work and how to pull me out of one they seem to calm down. I have discoved that the biggest reason why people are afraid of people with seizures is because they don't understand, once you explain it to them and take it all in good humor they begin to realize that it is not a life-or-death situation and that many people live very normal lives with seizures. I hope this helped you, please feel free to contact me as i am also new! :)
Hallie K.