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New diagnosis

Thu, 08/24/2006 - 11:29
My 9-year-old son has been diabetic for 5-1/2 years. He had a grand mal seizure about 2 weeks ago. I took him to the ER, he had an EEG 2 days later and we saw a neurologist last week. We got NO info from the neurologist, not even a diagnosis. He was just up on Keppra and told the EEG was abnormal. We have an appointment at Children's Hospital in Denver on Monday. Reading some of these posting, I'm concerned even more. He is very outgoing and very athletic. I know Keppra has the fewest side effects and does not require ongoing blood tests. I, too, am a little "extra concerned" about what he's doing and where he is. I would just sit and watch him 24/7 if I could but that has never been how we do things in this house. I would appreciate any advice or "words of wisdom" anyone can give me. I know this could be a childhood condition but, with his history, I honest doubt that will be the case. Any other juvenile dibaetics out there?? Since the seizure, his sugars have been extremely difficult to control. I'm a transcription and have typed neurology in the past - but, when it comes to your own child, everything you know or should remember goes right out the window! Also, I would love to know more about small, petit mal seizures. Thanks!

Comments

Re: Re: Re: New diagnosis

Submitted by Michtom on Sun, 2006-08-27 - 23:42
I understand your comment re the worry re personality. I have been going thru the same thing with my daughter. For us, with agreement from our Drs, we treat any personality change the same as we would any other side effect - in other words if its an unacceptable serious side effect we change the medication. The hard part is knowing what changes in peronsonality are normal ( eg because of natural puberty changes etc and natural upset/anger re the diagnoses) and what is medication related. Also many of the personality/mood effects we found are short lived as the child seems to adapt and become used to the medication. Be assured , we have been on medication for more than 8 months, and though our daughter is on very high doses, we haven't 'lost' her. She's still the same girl.

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