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Looking for some insight on hallucinations and seizures

Thu, 03/22/2012 - 22:47
I am hoping someone can provide me with some insight on seizures and hallucinations. My daughter who is 13 has complex partials, absense, and tonic clonic seizures. Last week I received a call from her school stating that my daughter had seen a "person" in all black, no face or anything like that. I was told by the school I  had to immediately take her to the ER as this was NOT normal. I took her to the ER, and gave them all of her medical history, medications, etc. The Dr's, nurses and a crisis worker all spoke with myself and also with my daughter. I stated numerous times that I believe this was seizure related. They recommended I sign a consent to send her to a "facility" for a mental evaluation, as they had never heard of a seizure causing a hallucination. I again stated that she has never hallucinated, and she was completely calm and of sound mind when I arrived at her school, the entire episode lasted all of a minute and a half (her teacher timed it in case it was a seizure) I told them I would not send her to a "facility" how ever I would follow up with a Psychiatrist if her Neuro agreed with their opinion. They were fine with that and discharged my daughter. She has been completely fine since, as she was prior. So we had followed up with her Neuro, and she said she was stumped as it is not common that an epileptic would hallucinate and remember the details of the "person" such as there was no face just all black clothing. She has set up testing for my daughter, another eeg, another MRI and also wants my daughter to see a psychiatrist just to rule out mental illness. I truly believe with all of my being that this was indeed seizure related. I feel as if my input, and also my daughters input is totally being over looked. My daughter does not want to talk to anyone else about this again, she has said she is TIRED of the Dr's looking at her with the wide eyes and making her feel as if she is crazy. This as a mother is very tough to hear a child say. I am trying to assure her that she is not insane or crazy. Has anything like this ever happened to anyone? I would appreciate any information any one has..

Comments

Re: Looking for some insight on hallucinations and seizures

Submitted by aluck12 on Mon, 2012-04-02 - 21:45

I take keppra for my juvenile myoclonic epilepsy and an uncommon side effect is hallucinations.

ASHLEY

I take keppra for my juvenile myoclonic epilepsy and an uncommon side effect is hallucinations.

ASHLEY

Re: Looking for some insight on hallucinations and seizures

Submitted by tcameron on Tue, 2012-04-03 - 01:50

Seizures do bring on hallucinations some people.  It's happened to me.  An AED also caused hallucinations for me.  Every person is unique.  We each respond differently to our seizures and AEDs.  Is she being seen by an epileptologist?  She's certainly not crazy.  It happens to some of us.   

 

Seizures do bring on hallucinations some people.  It's happened to me.  An AED also caused hallucinations for me.  Every person is unique.  We each respond differently to our seizures and AEDs.  Is she being seen by an epileptologist?  She's certainly not crazy.  It happens to some of us.   

 

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