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In Desperate Need of New Seizure Med Regime!

Tue, 05/30/2006 - 13:34
My son is 10 with frontal lobe epilepsy. He experiences constant abnormal discharges in both sides - sometimes all 4 - of his brain. He has an extremely difficult time focusing and this year we saw a major decrease in his academic abilities - although in 4th grade, he is now functioning at a upper 2nd grade level. Last yr in 3rd grade he did very well. We have asked his drs about it but they have no solution. He currently takes trileptal, topamax and diazepam(valium) to control his seizures & abnormal discharges. Does anyone know of any better seizure med combo that has been working well for them and without such poor side effects? He also suffers every spring with a mood/anxiety/depression disorder & facial/vocal tics his dr says is directly related to the discharges. In the meantime, he has lost almost all of his friends and has no desire whatsoever to play or do anything other than watch tv or lay on the couch. HELP US PLEASE!!! thank you, Jack's Mom PS..he has also gained a lot of weight in his belly area where he used to always be slender..any ideas??

Comments

Re: Re: Re: In Desperate Need of New Seizure Med Regime!

Submitted by shannon1220 on Wed, 2006-05-31 - 20:06
He sees an epilepsy specialist in chicago - its just that sometimes it feels like the dr himself doesnt even know what to do with my son. Apparently his type of epilepsy is not seen very often. Thanks for the thoughts though!!

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