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BRE
Wed, 07/30/2008 - 01:33Topic: Living With Epilepsy - Youth
My 9-year-old son was diagnosed with BRE last week. He started having twitches in his face 4 months ago and only happend while he was just waking up but still groggy and tired. Last week he had a full grand mal seizure that started with the twitching in his face but spread full body. We had an EEG done on him and were told it came back abnormal and that he had BRE. We are not able to see a pediatrician neurologist until 2 months from now. Anyhow, I am told that these usually occur during sleep or upon awakening. I have not had a good nights sleep since last week. I just lay awake all night and watch him. I sleep on and off all night and at every twitch I am scared. How does anyone else cope with this and do they get much sleep or any suggestions as to what anyone else does for peace of mind during the night??? rayray's mom
Re: BRE
Submitted by Sarahs Mom on Mon, 2008-08-18 - 11:44
Thank you all for your comments and insight. Our daughter Sarah was diagnosed with BRE last week, and we are struggling to learn all we can since. She was rushed to emergency after a seizure, when she could not move her left arm or leg. The EEG confirmed BRE, and the pediatric neurologists recommended Trileptal immediately, due to the temporary paralysis. From all you have shared, our first priority is to refine our bedtime schedule, as well as set a daily schedule and try to reduce stress and anxiety. She starts kindergarten in two weeks, so we are concerned that this will increase her anxiety, and risk further seizures. Due to the hereditary nature of BRE, we are also worried about our 2 year old son. Is testing recommended for siblings before they show signs of seizures? Any information on this would be appreciated.
Thanks again. Wishing you all strength and peace of mind!
Thank you all for your comments and insight. Our daughter Sarah was diagnosed with BRE last week, and we are struggling to learn all we can since. She was rushed to emergency after a seizure, when she could not move her left arm or leg. The EEG confirmed BRE, and the pediatric neurologists recommended Trileptal immediately, due to the temporary paralysis. From all you have shared, our first priority is to refine our bedtime schedule, as well as set a daily schedule and try to reduce stress and anxiety. She starts kindergarten in two weeks, so we are concerned that this will increase her anxiety, and risk further seizures. Due to the hereditary nature of BRE, we are also worried about our 2 year old son. Is testing recommended for siblings before they show signs of seizures? Any information on this would be appreciated.
Thanks again. Wishing you all strength and peace of mind!