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When describing your seizures to your doctor...
Sat, 09/29/2007 - 13:16Do use more technical terms, describing them as absence, tonic-clonic, etc and so forth seizures, or do you just try and describe them or give the description other people have given you, "You looked like a fish out of water flopping all over the place", and hope that's given them a clue?
Personally I'm thinking of cornering my neurologist and telling him my understanding of each type of seizures and what I think mine are, I'm tired of sounding idiotic while trying to describe these things, esp. since they're showing more and more of a pattern that makes me think the absence and partial seizures were never controlled to begin with and they're triggering secondary generalized seizures, rather than starting out as tonic-clonics to begin with, but I have had doctors in other specialties not appreciate it when patients use technical terms.
So, how do you talk to your neurologist?
Comments
Re: Re: Re: Re: Re: When describing your seizures to your doctor
Submitted by wichitarick1 on Mon, 2007-10-01 - 14:25
peace R.C.
Hi
At least you under stand what is going on ,No matter what it needs to be and must be written down I am rotten at this and now just simply forget my notes and stuff like that .
There is no denying what is written on a calender or better a note book with dated pgs. . lol. I used to fully understand what the various types of szs. were and figured out I was having them and now after huge amounts of them I simply can not remember what is different with each one ,and it takes 8 days to recover from a gmal which I had 2/3 of last week so it is a bit confusing . "show what you know" a nurse told me that. I just got out of the hosp. for side effects from meds that if I would have continued on I feel I would be dead. read, read , read, Rick
Re: When describing your seizures to your doctor...
Submitted by bernardcwe on Tue, 2007-10-02 - 08:29
So, how do you talk to your neurologist?
My wife's doctors have always asked her pointed questions about her seizures, what happens, etc. and then explained what type of seizure they were (most likely).
We try to be precise when describing seizure activity. If we are certain we know what type of seizure it was, we use the clinical name for it. Otherwise, we describe what happened.
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Re: Re: Re: Re: When describing your seizures to your doctor...
Submitted by Gina Marie on Sun, 2007-09-30 - 23:37
Ugh, your seizures change every three months? And here my neuro was getting upset because mine had changed about every three to four YEARS. you should go visit him, that way I wouldn't look so problematic :D j/k, that seriously does suck, is this common with the type of epilepsy you have?