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What's your postictal state like?
Fri, 07/26/2013 - 11:02Hi everyone!
A few years ago, I was diagnosed with epilepsy--complex partial seizures. To cope, I wrote a novel about someone who suffers fom epilepsy. Now, I'm trying to revise said novel, and I need some help. My character has grand mal (tonic-clonic) seizures from time to time, and I want to make sure I got his postictal state just right. I want this to be realistic because I would like to get it published one day. After all, how can we spread awareness if we don't spread the truth?
I have postictal states that consist of a small bit of confusion, nausea, and a headache. However, those are after seizures that are only about ten seconds long. I would like to know what YOUR postictal state is like. If you have grand mals, are you able to function afterward? Are you sleepy? Do you have to take a nap or are you able to continue about your day? Do you know what happened as soon as you wake up? Do any of you need assistance after a grand mal? These are the questions I would like to have answered.
Thanks so much for all of your help! Take care of yourselves.
Lina
Dear Community,Tonic Clonic
Submitted by Anonymous on Fri, 2014-08-01 - 23:48
Dear Community,Tonic Clonic Epilepsy just snuck up one me. I am a 30 year old female. Technically is was gradual starting when I was 22/23 years old. On May 1 and 2,2013 it made it's presence known. I had one grand mal and another 12 hours later. Since than I have battling the monster. Despite being on 4 meds my epilepsy is not considered to be controlled. I live in a box. I bravely cross the street sometimes to CVS. What I really need is a dog. While the meds have knocked out some of the different types of seizures it hasn't knocked out all of them. Currently my struggle is waking up postictal and all messed up. I can be postictal in the morning for all long as 2 hours. My doctor told me if it where not for the meds I would be having grand mals all the time. Where on earth did this come from? Best,Sophie