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weird seizure triggers?
Tue, 05/23/2006 - 13:30Comments
Re: weird seizure triggers?
Submitted by tom_euro on Thu, 2008-03-13 - 19:26
Whenever I listen to music on my headphones, i get auras and de ja vu. Especially if im lying down, sometimes they lead on to a partial seizure.
I cant read from mgazines, newspapers or books, as they cause me dizziness and de ja vu. Even sending texts or looking at my mobile can trigger a partial seizure. However looking at the computor screen dosent bother me
Whenever I listen to music on my headphones, i get auras and de ja vu. Especially if im lying down, sometimes they lead on to a partial seizure.
I cant read from mgazines, newspapers or books, as they cause me dizziness and de ja vu. Even sending texts or looking at my mobile can trigger a partial seizure. However looking at the computor screen dosent bother me
Re: weird seizure triggers?
Submitted by ncola on Fri, 2009-11-13 - 15:42
Hi ,
Have read many of your comments and it's interesting to find trends existing that doctors haven't been able to account for with me.
The gym has been the one constant trigger for me. Even when my epiliepsy was mostly controlled with meds, 14 months later or so, it was the gym that would be the trigger. I would go 2-4 times a week so fairly moderate and only for 40 minutes at a time. They would always happen on cardio machines but sometimes as early as 10 minutes into the workout.
After the first couple of times blood tests showed that one of the salt levels in my blood was too low. My doctor asked how much water I drank in a day. He explained that there are 2 types of salt in the blood , and the epilim I was on at the time (sodium valproate) was being diluted too much by the volume of water I was consuming. Since then I'm much more careful not to overdo the water drinking.
Meds did get altered but still the seizures were triggered while I was doing the cardio equipment. It wasn't the lights (because there were none of those types there). Then I started back again another time, deciding I'll only do 10 minutes then sit down and have a break... I did the workouts like that for a while, then one day walked into to the changing room at the end of a workout and it happened again.
I enjoyed going but the cost of not driving for a year is too great for me to take the risk any more so I've decided not to go. I've taken up ceroc dancing instead which I'm enjoying!
I miss it, and it impacts on how easy I find it to control my weight and shape. I do feel for you guys for whom it is such a big part of your lives though. Very very frustrating.
Maybe some of the other suggestions people have made will provide a basis for some research. There's clearly something going on there wheher it's to do with exertion, electrical pulses from the machines, something to do with repetition and what happens in the brain...
I just wish the medical world's progress would be a bit faster and that they would look at causes as well as treatments.
Hi ,
Have read many of your comments and it's interesting to find trends existing that doctors haven't been able to account for with me.
The gym has been the one constant trigger for me. Even when my epiliepsy was mostly controlled with meds, 14 months later or so, it was the gym that would be the trigger. I would go 2-4 times a week so fairly moderate and only for 40 minutes at a time. They would always happen on cardio machines but sometimes as early as 10 minutes into the workout.
After the first couple of times blood tests showed that one of the salt levels in my blood was too low. My doctor asked how much water I drank in a day. He explained that there are 2 types of salt in the blood , and the epilim I was on at the time (sodium valproate) was being diluted too much by the volume of water I was consuming. Since then I'm much more careful not to overdo the water drinking.
Meds did get altered but still the seizures were triggered while I was doing the cardio equipment. It wasn't the lights (because there were none of those types there). Then I started back again another time, deciding I'll only do 10 minutes then sit down and have a break... I did the workouts like that for a while, then one day walked into to the changing room at the end of a workout and it happened again.
I enjoyed going but the cost of not driving for a year is too great for me to take the risk any more so I've decided not to go. I've taken up ceroc dancing instead which I'm enjoying!
I miss it, and it impacts on how easy I find it to control my weight and shape. I do feel for you guys for whom it is such a big part of your lives though. Very very frustrating.
Maybe some of the other suggestions people have made will provide a basis for some research. There's clearly something going on there wheher it's to do with exertion, electrical pulses from the machines, something to do with repetition and what happens in the brain...
I just wish the medical world's progress would be a bit faster and that they would look at causes as well as treatments.
Re: weird seizure triggers?
Submitted by rvas on Fri, 2010-08-20 - 22:39
I have had seizures for the last 14 years and i never realized others had these same feelings and reactions i have been on many different meds and kepra was by far the worse i had alot of stress in my life and made me very aggressive hopefully you will have better luck here is a website for side affects http://www.keppraxr.com/about/effects.aspx