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Support?

Sun, 06/28/2015 - 18:30

Where do you get support?  I am feeling very frustrated with my brain and I wish I had someone to talk to about it.  I was dx'ed about 3 years ago and I'm still struggling with seizures.  I've tried a few different meds without success.  I just started on Gabapentin about two months ago and increased dosage this week, but sz continue.  It's frustrating and it's lonely.  I guess I'm just wondering how all of you get through the emotional side of things- who gives you support as you go through this illness?

Comments

Thanks for responding Ryan. 

Submitted by Anonymous on Mon, 2015-06-29 - 20:19
Thanks for responding Ryan.  I did call my local epilepsy foundation early on in my dx.  Unfortunately, they were the opposite of helpful- rude, impatient, and unwilling to give me any info.  They only kept referring me to the website.  sigh.  It was a disappointment, but maybe I'll try again at some point.

Hey I'm here for ya. I get a

Submitted by scott07french@gmail.com on Fri, 2015-07-10 - 06:41
Hey I'm here for ya. I get a lot of questions on how I'm doing blah blah blah. I appreciate them asking but I've lost a lot of friends cause I'm "different". I've had them for 13 years now but made some life changes recently and noticed this.  The emotional part I've given up on. You just have to realize sometimes that there's nothing no one can do except the dr. I always want to open up with everyone and tell them what I am dealing with but either they get sick of hearing about it or just don't care haha. So I try and move on and live life instead of the epilepsy dragging me down. I'm setting up appointments with a therapist actually so I have someone that will take an hour a week to hear me complain! 

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