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Support?
Sun, 06/28/2015 - 18:30Where do you get support? I am feeling very frustrated with my brain and I wish I had someone to talk to about it. I was dx'ed about 3 years ago and I'm still struggling with seizures. I've tried a few different meds without success. I just started on Gabapentin about two months ago and increased dosage this week, but sz continue. It's frustrating and it's lonely. I guess I'm just wondering how all of you get through the emotional side of things- who gives you support as you go through this illness?
Thanks for responding Ryan.
Submitted by Anonymous on Mon, 2015-06-29 - 20:19
Thanks for responding Ryan. I did call my local epilepsy foundation early on in my dx. Unfortunately, they were the opposite of helpful- rude, impatient, and unwilling to give me any info. They only kept referring me to the website. sigh. It was a disappointment, but maybe I'll try again at some point.