Seizures caused brain damage personality changes

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Here is my background (important for the question)-

I was diagnosed with complex seizures about a 1.5 years ago. At that time I was having many per week. I was started on Lamictal which I took for about 8 months- it controlled my seizures very well. I stopped taking my meds because of repeated kidney issues (which my neuro refused to acknowledge were related). I stopped seeing the neuro and stopped taking the Lamictal.

At first I did just fine without my meds. Two months into being med free I started having the complex seizures again. I figured that the seizures were less disturbing than the meds...besides I had a strong aura so I felt safe enough. Then the grand mals came out of the blue.

I have NEVER experience anything more horrible. My entire body hurt for days, and my eyes ached so bad. I felt like I was in a fog for a day or two. I still didn't go to the neuro at first..I knew she would report me and I was only having them at night when my husband was home. He isn't so good at describing things. At first he was saying that I had a seizure and then was twitchy for about 30 minutes (normal for me). Turns out that I was having a few GM in a row.

After about two months I realized that I was having trouble finding simple everyday words- spelling became horrible. My mind wasn't crisp anymore...even simple tasks were more difficult. I felt like I had list 30+ points on my IQ. I ended up in the ER after my husband refused to take the rages that followed the seizures for a day or two after...I went from nice to a raging bit%h.

My new neuro started the Lamictal again. She upping the meds up to 400 mg and I am feeling pretty good. I let her know my concerns, my mental clarity, and crispness is still gone. I feel stupid now. She said that I probably have brain damage. She said that happens when people stop meds and seizures generalize. I asked if over time it will get better. All she would say is that if I stopped the seizures it wouldn't get worse.

Anyone else with mild brain damage from seizures? If so can you tell me why, and if it has gotten better or worse with time?

Thanks- Trisha

Comments

I only had one seizure but

Submitted by Healthyself on Thu, 2018-01-18 - 21:28

I only had one seizure but please look into neuroplasticity. The brain can repair. The effects you describe d on the brain I actually got from clonazapam over 13 years. You will need to exercise your brain, but there is so much info emerging in Neuroscience. Read the book The brain that heals itself. Don't let fear feed the haze in your head as anxiety can cause similar issues.perhsps meditation,along with daily regimen of learning. Trust me I know the feeling..I was voted most likely to succeed graduated first in my class and then my brain got altered,but I know it's not beyond repair, that I just need to truly exercise my brain and build new neural connections.

My name is savannah brown. I

Submitted by Savbrow514 on Mon, 2018-01-29 - 08:37

My name is savannah brown. I am now 20 years old. When i was about 13 i met my boyfriend terry. We had played a game of baseball and i got rocked right in my forehead. Now i wasnt bleeding i just had a huge lump on my forehead. When i was a baby about 4 years old, i had gotten ran over by my german shepherd and my head smacked our pool table. Around the time i met terry, and let me mention, i DO NOT REMEMBER when my seizures started. I believe it was right before i met him or right after. I have bad long term memory, decent short term. When i started having these things i thought they were panic attacks. Ive heard it before and i thought i felt pretty panicked so i went with it. I would have thease anywhere from once a day to 5 times a day. I would feel butterflies in my belly and have to stare at something around me ... i would lick my lips and i wasnt able to talk unless i put my panic aside and made myself calm down. Sometimes i got so good at it i could actuslly stop them while i was feeling my aurora. At this point im about 16 still not telling anyone whats going on. I had thease constantly for three years and then... about 18, 19 boom. I woke up one morning bubbling out of my mouth shaking and my boyfriend turned me on my side trying to wake me up. I wouldnt wake up and when i finially did i asked my boyfriend and father , what the hell are you guys doing ? I had no idea anything had even happened! After that, i got picked up by 911, they told me i had a seizure. I was scared! Then i was sent in to see nourologist after i had told them my life story about thease "panic attacks". I was given an EEG , had a heart monitor to see if i had a heart murmur because of my fast heart rate when im having these attacks. Now i had a panic attack 5 mins before i went in for EEG. They clearley saw i had a seizure again. So now im thinking... wow ive been putting this off and dealing with this shit i thought was something stupid and now i find out these are seizures??? I was upset. Since then, i have had a total of 4 grand mals and 2 more seizures i dont know what to call. I would get out of the shower and not know what i was doing , how i got there. I started at a new job and halfway through my workday i clocked out , went outback puking, my manager helped me back in and put me back to work! An hour later i go to clock out and she says on honey youve been clocked out ever since you were out back throwing up. I had NO IDEA THIS HAPPENED i thought i had a great work day and that i was done! Its crazy what can really happen to you out of nowhere. I was put on (sorry for spelling) levitracium, and a mood stabilizer i forget the name right now. They have taken away 95 percent of my seizures. For the last year now i have had about 10 small 25 second seizures with tounge licking and scilence, then back to normal. I have had one instance where i got out of shower and got dressed, went to take my meds in living room and i had to ask my father what i was doing. I felt my hair wet and never even knew i had JUST gotten a shower. BUT opposed to 100 seizures in one month, to 2 seizures in one month. So i know the meds somewhat work. Ive been upped a dose to 1,500 mg of keppra. Im not satisfied because we still dont know the CAUSE of thease seizures i get at 13 years old and keep for life. I was given a cat scan and mri and nothing. I was asked to get a second mri after my last seizure , 20 years old. I just got it done two weeks ago and my doctor calls me. I have the cd i am bringing him on my appointment. ( in a week ) well, i got a call from my nourologist a week ago telling me the people from omega imaging had called him to tell him the young girl who was scanned had damage to BOTH sides of her brain and it is unknown why and it could be growing. Could be staying how it is. Now isnt that scarey to hear? You dont know what is going on with yourself and your doctor doesnt know either. Im going to let you guys know what happens after my appointment but this should be a good one ! If its scar tissue from past injuries it could be removed and i may never have a seizure again. May not be that easy. I cant stop thinking about it but something weird is going on here. Any suggestions? Comments? Help for me ? Anyone going through a similar experience ? I NEED HELP. :(