Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Only had one seizure..been off keppra for 5 months
Sat, 04/19/2014 - 13:18Hi Everyone!
This is my first time on this site and I thought I could receive some feedback from people with similar situations. I am 18 and I had my first seizure a little over 2 years ago. At the time that I had the seizure I was on monocycline for my acne. From what was decribed of the seizure from my friend who witnessed it, it seems that it was a grand mal. I do not remember how I felt before the seizure happened at all, I just remember waking up confused. I saw a neurologist the next week where I got an eeg done and the results showed a couple abnormal spikes in my brain. The neurologist put me on keppra and I was taking 2 1000 mg a day. After being seizure-free for 2 years, I had the option of getting off the medication. After talking about it with my family and the doctor, I decided to get weaned off. I truely believe the acne medication that I was on has something to do with the seizure, but my neurologist won't say. I am currently completly weaned off of Keppra and I feel fine but I still worry that I am going to have another seizure. I have been off of keppra for almost 5 months now with no seizures. I decided to get off the medication because I believe I will not have another one but the only way to see is to get off of the medication. My neurologist ordered an eeg that I got done yesterday, and I will find out the results in about a week. Has anyone experienced something similar like my case? I am getting anxiety of my results of my eeg. Please Help!
I will most definitely keep
Submitted by taylor14 on Mon, 2014-04-21 - 21:25
I will most definitely keep you posted! It's a great feeling to be off of the medication I can tell you that. But even while I was on the medication and did not have any seizures, it was also a great feeling. Just tell your son to stay as positive as he can and to not think about it. Just stay busy! Praying for a seizure free life for your son. Take care!